Saturday 9th July

Hello Everyone,
I thought I should update you and let you know how everthing is going. I have started the summer holidays (exams are over) and started my book. I have had a busy time already and I have a busy time ahead too.
Book
Well I have to say that it is a lot more difficult then I first thought it would be. You have to plan it write it perfectly, choose wether you are aiming it at adults or children, do it as a diary or a reference book and then write it well enough that people want to buy it and then find the time to do it all. So a lot more work than I expected, but thats alright because I enjoy work! I am just writing a load of things down at thwe moment and then I will put it all together nicely on the computer. Daddy was actually viewing a house yesterday and met a lady who knew someone who would be willing to help me with getting it together so I can't wait to get in touch with her soon. So all a bit stressfull but also enjoyable!
Exams
I kept trying to update you all during my exams and I kept starting an update but never finishing them, so I am sorry about that.
Anyway, I am very proud of myself for how well I did in my exams. I got above average out of the whole year in everything....apart from maths which I knew I wouldn't do great in but I tried as hard as I could. In everthing else my hard work payed off though becuase I came top of the class in History and English, 2nd in Latin and Geography, and 4th in French which was my lowest score, but I can't remember about my other subjects where I came but it was no lower than 4th!
Then I went and got a prize at speech day in History!!! Yippi!!!
Summer Holidays
We went to take that on Wednesday at Wemberly which was AMAZING! I loved it, we did a day of shopping and then to take that. I thought it was amazing. Although I do have to say that Robbie must be on something because he had so much energy and was a bit mad....but thats just between me and you!
I have started Physio, at Nufield hospital with a lovely lady called Annusha, because of my knee pains.
I am then going to fun week back at Stoneygate on Monday Wednesday and Friday and Mummy said she might take me into town on Monday afterwards and then to the Physio.
Tomorrow I am really excited for because I am doing th race for life in Leicester, although I am struggling to find a pink skirt! I will hopefully get some photos and post them on here soon!
I think I will be doing a lot of resting afterwards though because I will struggle with my knee and probably let my friends down a bit because I havn't done much training :(

So thats what I have been up to!
Love Mima xxxx <3
HEHE i love changing the colour on these!! xx

Tuesday 31st May 2011

Hello everybody,

My update that I promised is here! Well....where to start? I am in Mallorca here on holiday as you know with Mummy and Emily (left Daddy at home!) It's lovely and warm and we are just heading off down to the beach today. Although.... there is a down side to this wonderful holiday because no one can treat themselves too much...I have had to bring ALL my school books, which has filled my suitcase and hardly left me any room to take clothes so I am left here revising 6 hours a day (on beach instead of swimming and making sandcastles) with two outfits for a week! It really is the life (not). Lets just hope it pays of in the exams!

I have been really well overall, had a couple of bumps and bruises at the worst. I am getting fitter and I have managed to get into the A Team tennis at my new school (Oakham) which I am really proud of because it is my favourite sport of the year.

At school there was a Short Story Competition. I wrote about one of my experiences in hospital, Mummy said it was not the right thing to do because it was really sad and I could write about all the lovely things we have done, like our weekend in Paris, and describe them really well. But I thought I could describe my time in hospital even more well and in lots of detail. I worked really hard on it and made my whole class cry becuase it was so sad (don't know whether this is a good thing or a bad thing!) and managed to win the prize in my class. It is now going forward to be judged out of my whole year which is about 5 other stories of extremely high standard compared to mine because I am in one of the bottom classes. I will know how well I have done at the end of term.

In the meantime, because I love writing so much, I thought I would write a book for people on the ward, and people who would like to know more about Leukaemia and what it's like to have it with a glossary of all the drugs and side effects of them in the back.

I will be selling it for £5.99 and 75% of it will go to Ward 27 Leicester Royal Infirmary so Rachel can improve the ward. I will be writing it in the summer and I am just getting ideas together at the moment.

If I have missed anything just say and I will update you on that too.

Love Mima xx

Monday 30th May 2011

Hi everybody,

Sorry I haven't written in so long. I thought it would be nice to write now, as I haven't forgotten about my blog but I just saw it on my Grandpa's desktop in Mallorca (which is where I am now). I thought I would check to see if anyone still remembered me and that is when I saw that Max and Katty had written a Happy Birthday letter for me! I thought you deserved to hear from me and to hear what I am doing. Well, I am just off to bed, so I will tell you tomorrow what is going on in Mima Sellicks's world.

Wednesday 19th May 2010

DID I TELL YOU I HAVE CHICKEN POX!!!

Friday 16th April 2010

The good news is that I have not relapsed!

But I have got something called ITP, Immune Thrombocytopenic Purpura, which basically means that my immune system is eating my healthy platelets by mistake thinking that they are bad viral cells so my platelets are very low which is why I am bruising so easily. This is very very rare and only 4 in 100,000 children get it so I am really quite special!

But, I have to be very careful now and not do any contact sports or sports things where I could bang my head (cos I could bleed in my brain) so guess what that means - yup, you got it, no riding again until I am better.

I have to have another blood test on Monday and see what has happened to my blood since Thursday. Then I will have another blood test a few days later and then a few days after that. That's all very well, but as I don't have a port anymore it means that I have to have a needle stuck in to me (OOOOOWWWWW) and as my platelets are low it means I get a big bruise and I bleed alot (aaarrrggghhh!)

I have had enough and I think I am driving Mummy mad because I am not very good at being careful and not being active. We are meant to be on holiday in Jersey where we were going surfing and everything but we are stuck in boring Billesdon with nothing to do. Anyway, the flight was cancelled to Jersey because of the volcano so we would still be in boring Billesdon.

I think I will .....................................hmmmmmmm, what shall I do?????????

Wednesday 14th April 2010

Well, today has been a bit of an odd day really. We have been packing to go to Jersey for a few days and had to pop in to hospital for a routine monthly appointment this morning. Dr Madi did not like the look of all my bruises all over my legs again so he asked Auntie Pauline to take some blood from me to see what was going on. Then we went out for tea to meet my godmother Auntie Jax and Mummy's godson Archie and Daisy too when Dr Madi called Mummy to say that my platelets are very low so he would like me to go in for a bone marrow aspirate tomorrow morning!

Not happy at all - that means we can't go to Jersey after all so we have just put all our clothes away again!

Dr Madi wants to check to see if there is any sign of leukaemia in my bone marrow but I feel fine. Last time I lost my appetite, I was very skinny and pale and couldn't walk up the stairs. Well I feel just fine so who knows what it is.

I will tell you when we know.

Otherwise back to horrid general anaesthetic in the morning - yuk!

SUNDAY 7TH FEBRUARY 2010

HELLO EVERYONE!!!

We had a fab time in Barbados and the sunshine, sand and sea made us all feel so much better. Before we went, my face was really really sore and the skin was soooo dry, it was driving me mad but after a week in Barbados it was so much better. I used a cream called Vitamin E gel by Jo Malone (soooo soooo expensive) but it works so well it is worth every penny (mummy says!) It is all because my immune system is starting to work again and that affects your skin apparently. (I know Ruby's face is sore at the moment, so try this cream, it works wonders - much better than the ½% hydorcortisone the docs gave me).

I had my first clinic appointment since my treatement finished when we came back from Barbados and we were quite worried. While we were on holiday I had started to get quite tired and had spotted some bruises again so I was worried it was the Leukaemia coming back. Mummy and Daddy were very worried too and so when I went to clinic I had a blood test - but don't forget, I dont have a port any more so I had to have a needle stuck in to my arm. Actually it didnt really hurt! Anyway, the results showed that I was fine and had obviously just been enjoying the swimming and running around too much!

My next appointment is on Wednesday and so far, I have been feeling great. I have been to school every day, for the whole day (apart from one afternoon when I felt sick) so I am really proud of myself. My tummy is still not behaving too well, so I have a few problems there but I can manage that.

I took the entrance exam for a new school a couple of weeks ago. I was really scared because I have missed so much school but guess what..................................I got in, they want me!!! So that means that in September, Emily and I will be at the same school again, Yippeeeeee!!!

I just want to say to anyone who reads my blog who has leukaemia now, it really is ok..............I know cos I have done it.

I will write again when I have some news!

Have fun everyone

Love Mima xxx

Tuesday 22nd December 2009

Delivering Christmas cards

Ready for the Frost Ball

In Lapland

Well, I have been really rather busy!

I have been to Lapland and had an absolutely fantastic time (it would have been better if Mummy was there though)

I have been to my first ever Ball and had an absolutely fantastic time at that too (it would not have been as good if Mummy was there though!)

I have had my port out (I am glad Mummy was there)

I have finished school for 2009 and we are all getting ready for Christmas.

I had a swine flu injection which made me have swine flu. I had a temperature and everything ached, I felt sick and had a sore throat. It was horrible.

I have to tell you though, I am really very unhappy at the moment. I have a really bad cough and cold and Mummy won't let me go anywhere. I was invited to the cinema and she said NO, I am meant to be at the Panto tonight but she said NO and then I am meant to be going to the theatre on Christmas eve with all my cousins but so far she has said NO NO NO.

I do understand because we are going to Barbados on 28th December and I have to be better for that otherwise she will say NO to Barbados!!!

Anyway, I would just like to say

Merry Christmas everyone and Happy New Year!

Love Mima x

Thursday 26th November 2009

Great Ormond Street ......................................

Well, this is what happened: Mummy, Daddy and I went to London on the train which was great fun (I love going on the train!) and guess what? My Auntie Tan was on the train too so we sat with her! Then we went to Buckingham Palace to see the changing of the guard. It was a really sunny day and we climbed up on to the island monument thingy outside the palace so we could see what was going on. I really loved seeing the police on the horses and guess what...................when I grow up, I would like to be a mounted policewoman. I met one of the horses called Zena and she lived at New Scotland Yard. She was a beautiful grey and didn't mind the traffic and people at all.

Anyway, then we went to a yum scrum restaurant called cafe caldesi and I had a fantastically delicious steak with broccoli and little roasties, yummmmmmmmy!

Anyway, then we went to Great Ormond Street and I began to feel a bit funny and I was worried about what they might do to me. We had to wait for a few minutes and there were lots of children there. A very nice doctor spoke to me and Mummy and Daddy about what had been happening and about our family and my treatment and then we saw Professor Cross. Basically, she thinks that because she sees loads and loads of children who have epilepsy she has a pretty good idea of what is or isnt epilepsy and from what I told her about my seizures she thought the first one was perhaps an epileptic seizure but the other two weren't. She said with all the medicines I had had to take over the last 2½ years, I was bound to feel a bit funny sometimes and I might feel funny again but she didn't think it was epilepsy. In fact she thought the last one I had sounded more like a mild migraine! So Mummy gave her my horrrrrrrible epilepsy pills and said she never wanted to see them again! Then Professor Cross said she had a picture of my brain on her computer and it looked alright to her, then she said she was pleased to say that I was perfectly normal!!!

We all came out of the hospital very happy, well I was, but Mummy and Daddy both said that they had a fly in their eye because their eyes were watering!!!

Then because we were all so happy Daddy said we could do a bit of shopping but I didn't really find anything so we went back to the station and Mummy and Daddy had TWO glasses of champagne and I had a lemonade and a bowl of yummy scrummy ice cream.

So that was two weeks ago. Oh yes, then we went to see Dr Madi the day after Great Ormond Street and he said I had a pretty good chance of not getting Leukaemia again and he agreed that I didn't have to take any more pills (after I said oh please Dr Madi!). So now I have had a full week of no pills and I think I feel quite good!

My hair is growing back, a bit patchy, but it is growing. My ankles and knees are still achey but I think my bounce is coming back to my legs a bit.

Have a nice weekend everyone, I know we will!!!!!!!!!!!!!!

Thursday 12th November 2009

THE BEST NEWS WE HAVE HAD IN 2½ YEARS

Well, we were meant to wait until my appointment with Dr Madi next Wednesday but Mummy and Daddy couldn't wait any longer so Mummy phoned the ward today to get the results from my end of treatment bone marrow aspirate.

The results were fantastic - I am in complete remission and there was no sign of ALL in my bone marrow at all!!!

We have been dancing around the kitchen and everyone is crying!!! What a mess!!! I felt a bit weird when everyone was crying apart from me, I thought everyone should be happy but apparently they are!!

Night night

Love Mima x