Yesterday went very well, much better than I thought it would. I don't like being nil by mouth but now that I am not on steroids any more it seemed to be much better. Anyway, I was called in to theatre much quicker than I had expected (about 11.30 am and last week I had to wait until 2pm!) so I was awake again by 12.30pm and I have managed to work out a way of eating whilst I am lying down! I have to lie down for 1 - 2 hours after a lumbar puncture (LP) to help stop the methotrexate (medicine which goes into my spine) from giving me a very bad headache. So, spaghetti bolognaise, egg fried rice and lots of mini choc rolls later, I can sit up and guess what, my lovely friend Freya came to keep me company. I had to ring Daddy because I was still hungry, so he brought me another spaghetti bolognaise - yum. Then I had to have chemo into my port for about half an hour but because it can make my bladder irritated I had to have four hours of fluids afterwards!!! Then my Auntie Nic Nocs came to see me with Hattie and Tilly so Freya, Tilly, Hattie and I all did some crafts and the time passed really quickly. So a very big thank you to you all for helping with making the time go quickly!
Today I feel weak and my legs ache so I think I am being a bit whingey but I know that it is because my red blood count is low. Sally, the Macmillan Nurse came to take some more blood and give me some chemo into my port which was fine but made me feel a bit sick. I am taking two different types of anti-sickness med and have a special plaster behind my ear which gives me anti sickness meds over 3 days so hopefully I won't feel sick for long. I have to have the nurse every day for 4 days for chemo into my port and still have to have chemo tablets in the evening and some yuk medicine because we are having a new bathroom which is dangerous for me. The dust from the building could give me a fungal lung infection so I keep taking the meds.
I had lots of visitors today. Granpa and Janet came to help me with my new jigsaw and Lottie came to try on bridesmaids dresses. I then had a visit from Isla and Rachel which I loved especially as they brought me some cakes. Rachel looks really well and she helps me to think I can get well too. I also had a visit from Helen who brought me some scrummy chocolate which I am munching on - thank you! Venetia came with a fantastic chocolate cake - thank you too!
Anyway, the hospital just rang and said that my red blood count is just above the level that they usually give a transfusion and I am not neutropenic so I hope Mummy will take me horse riding tomorrow. Night night. I am going to dream about ponies!
Sunday 22nd July
We decided to have a virtual holiday this weekend because we should have been in Cornwall on our proper holiday but had to cancel it. So, Hattie, Max, Tilly, Uncle Edward and Auntie Nic Nocs came to our house for the weekend and we pretended we were in Cornwall! Today we went to the beach (actually it was Rutland Water but remember we are in Cornwall on holiday) and Daddy, Uncle Ed, Hattie, Max and Emily all went for a sail whilst Auntie Nic Nocs, Mummy, Tilly and I went to the beach cafe for lunch and ice creams. It was great fun and the sun shone all day. Max is really funny and makes us all laugh and Tilly does a great impression of a horse's bottom!!!! And Hattie, well she is just plain perfect! I hate it when holidays end, but at least we did not have the 5 hour drive home.
I have felt really well all weekend and it was fab to go out today.
Look what I received
I am so lucky
- I love watching
Do Something Different
or DSD on TV
and have actually written to them to be on the show.
Well a friend of Mummy's just happens to know someone who works on it and guess what ............. they sent me a signed photo!!!
How cool is that?!?!
This is me when I opened the envelope - quite happy!!!
19th July 2007
Well I am home with my new portacath fitted in my chest. I woke Mummy up at 4.30 am to have my last meal yesterday (a bacon sandwich) and then we went to hospital for 8.30am. I had to answer lots of questions about me and eventually 6 hours later I went in for my operation. The anaesthetists put a mask over my mouth to make me go to sleep and I waved to Mummy then I felt a bit woozy and off I went. When I woke up I felt horrible because i just didn't feel right but i was VERY HUNGRY! I had 3 bowls of pasta and 12 mini choc rolls, some chicken tikka, a packet of jelly tots and a milky way and started to feel better, oh and a bag of quavers. Then I found out that I have to have another medicine because we are having a new bathroom at home and it is dangerous for me to get dust in my chest so I have to have yucky medicine to stop me getting a chest infection YUK! I had to stay in hospital until 8 pm but then I went home and had some supper and went to bed.
I have just woken up and feel a bit stiff so I think I might stay in bed today.
Thank you for leaving me messages, I love to read them.
I have just woken up and feel a bit stiff so I think I might stay in bed today.
Thank you for leaving me messages, I love to read them.
Wednesday 18th July 2007
Having a port morning?
Yes, today i am having a port fitted,i am nervous but trying to keep my nerves down because if you are nervous somtimes your nerves wrap round your vains and that will make it harder for the nurses to fit the port into me. Anyway i am nil by mouth which means i cannot eat or drink till the operation is over because they dont want to have to look at what i have eaten while they do the operation! and because i am nil by mouth it is hard for me because it makes me want to eat double what i normaly eat but i am coming off that nasty medicine tonight!YIPPIE!I will be down to 3 medicines a day instead of 5, so thats really lucky for me.
Sunday 15th July 2007
I am at home at the moment enjoying spending some time with my family. I had a big test on Thursday where the doctors took some bone marrow from my back and gave me some chemotherapy in to my spine. I had to be put to sleep for about 20 minutes but I quite like going to sleep so I don't mind! They also put a new canula into my hand so I could have some chemo yesterday but the nurse actually took that out yesterday too so now I have no canulas at all!!! My back is quite sore and I find it most comfortable lying in bed but I do get up sometimes, especially when I feel hungry (which is most of the time!) I think I look quite different now as my tummy and cheeks are getting quite round from the medicine I am taking and my hair was falling out so I have shaved it all off. I will post a photo soon.
Mad Hair Day
This is me with mad hair having been lying down in bed for a few days. I couldn't even brush it so I decided to have it cut very short. I found a photo of Kylie Minogue which I liked and Mummy's hairdresser Clare came in to hospital and cut it for me.
Subscribe to:
Posts (Atom)
