Sunday 30th September 2007

I have had another very good week of feeling really well. I have been to school every day and even joined in with PE a couple of times!

Mike, Mel, Megan and Emily ran in the Great Kibworth Run today to raise money for the charities we are supporting and they all did so well. It was great fun watching everyone and I loved the t-shirts they wore with a picture of me on the back!!! They have raised loads of money £1291!!!!!!!!!

I am having some blood taken at school in the morning and then I will know if I will start the next block of treatment on Tuesday. If I do then I will have a general anaesthetic for a lumbar puncture, IT MTX (chemo into my spine), bone marrow out of my back and nasal tube fitted into my nose which goes into my tummy (yeah! no more having to eat and all the yuk medicines can go into the tube!!!) I am very tired at the moment and Mummy says I look pale and Daddy says my heart is beating very fast. All of that probably means that I need some more blood so I will know that too after my blood test in the morning.

Nasal Tube Nightmare

We went to hospital yesterday and saw Dr Madi. He had some good news and some bad news for us. The good news is that I am well, the bad news is that i am too skinny and i have to have a nasal tube fitted which i have never had before aaaaaaaaaaahhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!!!!!

the good news about that is that I can have all my meds in my tube so i won't have to swallow them any more and i will have a feed overnight on a pump so it doesn't matter if i don't eat at all!!!!!!! yippie!!!!

Now I know you are all waiting to know about todays big excitement ....................................my violin lesson!!!!!! yeah!!!! It was really fun and i hope mr roberts is listening to me now and sylvia (his wife) as i have been playing since i got home. If anyone would like to hear me just let me know and i will ring you and play you a tune.

Tuesday 18th September

I'm really well

I am at school most of the time now and managing to do full days mostly too. Some days Mummy has to come in to bring me some food because my tastes have changed or some times she takes me home for lunch instead (much better!)

I had my needle put into my port and some blood taken on Monday at School for the first time. Julie, one of the nurses, met me at school and we went to Matron's room. I was really excited to have it done at school but in the end it was the same as at home really. Then, guess what....... I fell over and hit my port ouch ouch ouch. I had to phone Mummy because it hurt so much so she came and sat with me for a while until I felt better.

We had swimming at school today but I couldn't swim because I had my needle in and I really wanted to go so my teacher said I could next week. I will have to see what my bloods are doing though because if I am neutropenic it won't be a very good idea. Booooorrrring - i really want to swim!

I am seeing Dr Madi in the morning for a chat as we have not seen him for a while and I have to have some Vincristine too. I had some last week and it has made my bones ache but mostly my mouth bones have been really sore. After tomorrow I have two weeks with no meds (apart from yuk yuk yuk weekend medicine) then the next block starts if my bloods have recovered enough. My platelets have to be above 75 (now they are 34) and my neutrophils above .75 (now they are .40)

Oh yes I nearly forgot to say I am really really really excited because I am starting violin lessons on Thursday. I can't wait but I have to give Mummy and Daddy some ear plugs!!!

Cricket Match and Family Fun Day

Wow, what a fabulous day we had. Thank you all sooooo much for coming and spending soooo much money - we made £4,000 and had loads of fun too. Jemima would especially would like to thank Uncle CJ for all his organising and emailing, the ladies: Philly Philpot, Lucy, Dav, Lizzie and Auntie Nic Nocs for all their organising, the van Oppens and the Howards for bringing the ponies (her absolute favourite!!!), everyone who made sandwiches or a cake, all the cricketers, Amelia, Alice, Hattie, Franny and Izzy for all their bits and bobs which they made and sold, Miss Rimmington and Miss Envis for their face painting and all the Mums who helped out with either leading ponies, taking money for teas, manning stalls or just being there.

Mima was absolutely shattered by the end of the day and needed to have a couple of bags of blood on Sunday to top her up again. She has managed a full day at school again today and thoroughly enjoyed it too. She has a couple of meds in hospital on Wednesday and then time to recover again from the last block of chemo.

Thanks very much once again to everyone for making Saturday such a success.

Friday 7th September 2007

Back To School

I made it back to school for the first day and a half and really enjoyed it. I have a very nice new teacher called Mr Murphy and my desk is right infront of him so he can keep an eye on me! I have to tell you, I was exhausted after just a couple of days so I had today off and relaxed ready for the big day tomorrow - I am sooooo excited I know I won't sleep tonight!!!

If anyone is in the Gaulby area tomorrow from about 2 - 6pm why don't you pop in to the Cricket Ground. We are having a cricket match between my dad's team and my uncle Matthew's team and a family fun day. There will be pony rides, face painting, sack races and lots of fun things for children to do and then tea at about 4pm.

My treatment is going really well too. I have my last IV chemo at home tomorrow which will complete the two week block and then next week I have to go to the hospital for IV chemo and an injection into my leg - remember that horried asparagus and mayonnaise. Then the next week I have to go back to hospital for the last IV chemo in this 9 week block and we are going to see my consultant again to see how I am getting on. Then two weeks off before I start the new 9 week block of chemo. Oh yes and I still have to have yuk yuk yuk weekend medicine.

Hope to see you tomorrow.