WEDNESDAY 24TH DECEMBER 2008

NEARLY, VERY VERY NEARLY CHRISTMAS!!!

Well, I have had my LP and Dr Madi decided it was best to keep giving me the ITMTX eventhough it may be irritating my brain. If I have another seizure then Mummy and Daddy and Dr Madi will have another talk about it but just now I am ok. My nurses have been very naughty though..................do you know what happened???? Well, last week Julie took my blood and put it in an orange bottle but it went to the wrong hospital so they lost it so then I had to go to hospital the next day for another blood test. That means my port in my chest has to be accessed (a big needle stuck into my chest) twice in two days......ouch ouch ouch! Then do you know what happened this week................Julie took my blood and it went in an orange bottle again and the hospital it went to lost it AGAIN so Corinne had to come today to take some more so that is another needle just a day after the last one. My port is really sore now and is quite fed up with being poked and is really really bruised so we are going to have a rest next week and just take my blood from my hand instead - yukkkkkkk!

We have been very busy, I finished school last week and had a big carol service which was cool. The week before we had a Jemima Invites Carol Service at Oakham School and I read from the bible. I really loved doing that eventhough there were over 420 people in the chapel!

I have had my friend Georgia over to play and we are all just about ready for Christmas now. Emily and I are sooooooooooooooooooooooooooooooooooooooooooooooooo excited we have decided to go to bed early tonight so that Santa can come quickly!!! We are going to meet our cousins in the pub first and then rush home to bed. Can't wait, can't wait can't wait. Then tomorrow we have Auntie Nic Nocs, Uncle Y'Ed, Hattie, Max and Tilly, Auntie and Uncle Geoff, Auntie Dottie and Uncle Maurice, Granny and Papa, Mummy, Daddy, Emily and Me for Christmas day Yiiiipppeeee!!!

Have fun everyone and happy, happy christmas!!!

Tuesday 9th December 2008

This is me and my school friends at the school disco. It was such fun and I danced with some of the boys too!!!
I have been on steroids and felt really yuk but now I have a cough and cold and feel even more yuk. I feel like I have low hb but apparently I don't. My legs hurt too. I went to school today but only for a couple of hours and I could hardly lift my head off the desk. Daddy picked me up and then when Mummy came home we went on a walk to get some fresh air with Digby. We went through the fields and down by the brook and Digby was really funny jumping in and out of the brook.
My arm is getting more and more better but one of the stitches from inside which was meant to dissolve has popped out and is really annoying. Nurse Julie tried to cut it off yesterday but it won't come off so I am just being careful with it. I can move my arm quite well but it is still sore.
We went to the ward 27 christmas party on Sunday and I saw lots of friends but most of us were on steroids so we were not very sociable. I wore my angel outfit and won a prize for most creative outfit! Thank you to all the nurses who made it such a good party.
I am meant to be going to Lapland on Friday but I have decided not to go because my arm is still too sore. We get to go on husky sleigh rides and snow motorbike thingys but I just wouldn't want to because I might bump my arm so I am not going. I didn't go last year either because I was poorly so I hope to be able to go next year.
Special message: Hello Rick, Jacquie and Mike!