Hi Everyone

My name is Jemima but everyone calls me Mima. I was diagnosed with Acute Lymphoblastic Leukaemia on 13th June 2007 and had to spend just over 3 weeks in hospital. I have set up this blog so that I can keep in touch with my friends and keep you up to date with what I am doing.

WE DID IT!!! - THANKS TO ALL OF YOU WHO HAVE SUPPORTED JEMIMA INVITES OVER THE LAST COUPLE OF YEARS, WE HAVE NOW MANAGED TO BEGIN THE RESEARCH WHICH PROFESSOR MARTIN DYER WAS SO DESPERATE TO DO.

Friday 16th April 2010

The good news is that I have not relapsed!
But I have got something called ITP, Immune Thrombocytopenic Purpura, which basically means that my immune system is eating my healthy platelets by mistake thinking that they are bad viral cells so my platelets are very low which is why I am bruising so easily. This is very very rare and only 4 in 100,000 children get it so I am really quite special!
But, I have to be very careful now and not do any contact sports or sports things where I could bang my head (cos I could bleed in my brain) so guess what that means - yup, you got it, no riding again until I am better.
I have to have another blood test on Monday and see what has happened to my blood since Thursday. Then I will have another blood test a few days later and then a few days after that. That's all very well, but as I don't have a port anymore it means that I have to have a needle stuck in to me (OOOOOWWWWW) and as my platelets are low it means I get a big bruise and I bleed alot (aaarrrggghhh!)
I have had enough and I think I am driving Mummy mad because I am not very good at being careful and not being active. We are meant to be on holiday in Jersey where we were going surfing and everything but we are stuck in boring Billesdon with nothing to do. Anyway, the flight was cancelled to Jersey because of the volcano so we would still be in boring Billesdon.
I think I will .....................................hmmmmmmm, what shall I do?????????

Wednesday 14th April 2010

Well, today has been a bit of an odd day really. We have been packing to go to Jersey for a few days and had to pop in to hospital for a routine monthly appointment this morning. Dr Madi did not like the look of all my bruises all over my legs again so he asked Auntie Pauline to take some blood from me to see what was going on. Then we went out for tea to meet my godmother Auntie Jax and Mummy's godson Archie and Daisy too when Dr Madi called Mummy to say that my platelets are very low so he would like me to go in for a bone marrow aspirate tomorrow morning!
Not happy at all - that means we can't go to Jersey after all so we have just put all our clothes away again!
Dr Madi wants to check to see if there is any sign of leukaemia in my bone marrow but I feel fine. Last time I lost my appetite, I was very skinny and pale and couldn't walk up the stairs. Well I feel just fine so who knows what it is.
I will tell you when we know.
Otherwise back to horrid general anaesthetic in the morning - yuk!