Thursday 24th January 2008

Last Vincristine for this block of treatment

I had the last Vin and Christine today and just have to wait until my blood results are good enough to start the next block of treatment.

I have been to school every day this week and I have been eating loads too so feel really good.

After riding on Saturday I am going to my friend lily's big sister's birthday party and there is going to be a karaoke thingy - I can't wait.......what shall I sing? My friend Alex's mum (from hospital) has been so kind and given me some very trendy tops so I am going to wear one of those for the party!!!

I saw my friend Asma in hospital today and she has finished her treatment now and had her hickman line taken out. She is so lucky, all her hair is growing back and she looks so well. My hair has all gone and my eyebrows so I think I look like an alien! I really want my hair to come back but only if it is going to stay and grow really long and blonde. I can't be bothered if it is going to fall out again. Asma and I were planning a weekend when she can come and stay and we are going to ride together because she loves ponies too.

Georgia was in hospital today too and her mum was knitting a really cool teddy. George is nearly at the end of her treatment but is not feeling too good so lots of get well wishes to you.

I am soooooooo tired, night night!

Saturday 19th January 2008

MOOOOOORE BLOOD !!!

I was right - that blood didn't work last Saturday so I had two more bags yesterday and a bag of platelets too but that was really hard work because we didn't get home last night until 11pm and I was soooooo tired.

I went riding this morning but do you know what, my favourite pony, Robbie, is going back to his owner this afternoon so I won't see him again. We went out for a hack this morning and met Mummy who was walking Digby. It was great fun but first of all I fell off because another pony got out of his stable and frightened Robbie!!! It didn't hurt, I just went PLOP on to the ground! Apparently you have to fall off 7 times before you are a good rider, so only 5 more time to go!

I am still really tired and don't have much energy so I am not sure if this blood has worked either. Mummy thinks it may just be because I have had so much chemo over the last couple of weeks and my body needs to recover. After the last vin and christine next Thursday I will have a week off so hopefully will begin to feel well again then.

We just got back from having supper Market Harborough as a special treat, it was lovely and we all had a really good time.

Night Night! xxx

Thursday 17th January 2008

Asparagus and Mayonnaise for tea!

That is what I had today in an injection into my leg muscle - ooooowwww! that really hurts. Then I had some Vin and Christine into my line and some more blood taken because I still feel very sleepy and my legs aren't working very well.

I went to school for half a day on Tuesday and all day on Wednesday and then half a day again today but I get soooo tired. When we were coming home from the hospital this afternoon I fell asleep in the car and couldn't wake up to do my homework!

One more vin and christine next Thursday and then I am at the end of this block of treatment and will start back on escalating capizzi for another 9 weeks. I don't like escalating capizzi much because it made me really poorly last time and my mouth and lips were very sore with ulcers and I was in hospital alot.

Friday 11th January

Blood Transfusion

I had to have another blood test today as my hb is low. I have not been feeling too good today so I didn't go to school. I am so tired and my legs just won't work.

Guess what the blood results said ...................... yes I have to have a blood transfusion tomorrow. Well actually, the hospital wanted me to go tonight but I am too tired to go so we will go tomorrow. I have to have some more chemo tomorrow in hospital anyway, so now I will have it all at the same time.

Wednesday 9th January 2007

Back to school - aaaaaaaaaaaaarrrrrrrrrrrrrrrrrrggggggggggggghhhhhhhhhhh!

School started again today but I couldn't go first thing because I had a blood test at home. Then when I did go it was good. I wasn't looking forward to it much because I like being at home with Mummy but it was good.

My treatment started again last Thursday and I have been quite well apart from feeling sick most of the time. The chemo finished on Monday and then I had yesterday and today off but have to go back to hospital tomorrow for another sleep and IT MTX then chemo everyday until Tuesday again. My blood results were not too good today so I will probably be having a transfusion very soon. My hb was 8.2 and usually you get some more blood when it goes to 8. My neutrophils are 0.4 so that means please don't come near me with any germs or I will be poorly. But my platelets are good.

Now lots of people have been asking what I had for xmas so I will tell you. I had lots but here is some of what I had. Paper FX to weave recycled paper and make pots or bags out of, Digimakeover, well what you do is take a picture of you or someone and plug it in to the tv then you can put hair or makeup and jewellery on, it is cool. I had a really nice charm bracelet and some charms of a pony, a heart and an elephant with a diamond eye! My big cousins gave me a lovely necklace, my godfather gave me a fabbbbbbb fur coat and oh I had so much more too.

I have just had a really big tea because I am nil by mouth from midnight and I don't like waking up hungry. Night night xxx

Wednesday 2nd January 2008

HAPPY NEW YEAR!!!

I have had a really good week. As you know my blood results last week were not good enough for me to start my treatment again but that meant that I had another week off so we were very lucky and invited to Norfolk for a couple of days. We stayed with some very good friends called Penny and Adam and two of their children, Millie and Flora. oh yes and their dog Lottie who is our dog Digbys sister. Their dad Charlie was there too as his owners Lucy and Ashley came too with their two children. We had great fun on the beach with all the dogs and i walked for miles both days. The sea was a bit cold but we did see some people swimming! It was really fun and good to be back in Norfolk because we didn't go in the summer at all.

Now then I had my blood taken this morning and Katie rang to tell me that it was fine so I could start again tomorrow so that is what I am doing. I have to be in for 8 .30am for a general anaesthetic so the doctors can give me an injection of chemo into my spine (IT MTX). Thats ok but then I have to have chemo into my line for FOUR hours. I will feel really really sick and probably be sick too. I will have a nurse visit at home every day for 4 days to give me some chemo into my line then it starts again the next Thursday with a general and IT MTX then 4 more days of chemo at home and while that is all going on I have to take some more chemo for two weeks oh yes and the yuk weekend medicine but now I can swallow tablets that is nowhere near as bad. I started taking some multivitamins today too which I swallow just in case i don't get enough from the food I eat. Then after that is the aaaarrrrgggghhhh asparagus and mayonnaise in the leg and a bit more vin and christine then another week and another vin and christine and then finished for that block. Guess what happens then????? back to escalating capizzi - loads of meds all over again.