We're home!

Hello Everybody!

I have just been on holiday to Brancaster Staithe for a week with the Povers and the McCormacks. I had a fab time and Millie, Flora, Issy an Ed let me go in their pool every day and let me sail their Topper too. We went to the beach every day and it was really sunny.

This week Emily and I are off to Debbie's for Pony camp and Debbie said we can sleep over too. We can't wait!

Next week we are sailing for 4 days doing our RYA stage 4 again and then learning how to sail with spinnakers. Yippeeeeeeee. I hope it is windy enough!!!

Oh yes, I feel really well too. My toe is much better now and I am not on steroids anymore so not much bone ache. I have vincristine on Wednesday and start on the dreaded steroids again which is one week early because we are going to Devon for 2 weeks at the end of next week and I can't have vincristine whilst I am there.

Friday 18th July 2008

I had a fantastic day today.

Wishes4kids held a day at Donington Park for all the children they have granted wishes for (remember they gave me an amazing day out at Strictly Come Dancing). I took my friend Georgia because Emily was busy and we went in so many really really fast cars. I went 100 miles per hour in a Caterham with a nice man called John driving, it was a bit scary but very fun too. We had a yummy lunch and tea and got to play on a huge scalectrix and I drove in an F1 simulator car. I saw lots of my friends from ward 27 and had a fantastic day.

I am on steroids again and I feel so yuk. I am really really tired, hungry all the time, cross and I can't sleep but other than that I am fine! My friend Georgia was really kind to me today because she knows what I am like on steroids. Thank you Georgia.

Thank you very much Russell and Wendy for such a good day.

Message from Mummy for Kirsty - Nicole Dryburgh is who she was talking about and her web address is http://www.c-h-o-c.org.uk

I am not using colours today because I don't feel like it.

Sunday 13th July 2008

I am really well!

Apart from just a few aches and pains. I have been very busy, helping out at the riding stables but I was very tired yesterday because I had so much to do. I fell over a couple of times but I am ok. I am going to do two full days next week because there are pony days at the stables and Debbie needs lots of help.

We have had a fantastic day today. It was the Kirby and Desford Tennis Tournament for the juniors and Emily and I both played. It was really fun and we had a swim afterwards then yummy tea and a disco. At the end of the day I had a really big treat because the lady who lives at the house where we had tea has a tiny pony and trap and I had a ride on it, it was great fun. Mummy wants to get a trap so Digby can take us for rides!

I am going to have some IV chemo on Wednesday and start the dreaded steroids again for 5 days - yuk, yuk, yuk. I am going to see Dr Madi aswell and I am going to tell him about my sore ankles and my arm which hurts again now. Last time I saw him he thought it would be a good idea to have an xray to see what my bones look like so maybe I will have that this week. Who knows?

Thursday 3 July 2008

Well done to all the Triathlon people today (and Rosie a couple of weeks ago).

I had my LP, ITMTX and BM this morning and it all went very well and I woke up feeling a bit sore on my back but mostly fine. My blood results haven't really changed much other than my neutrophils have gone down. I am not neutropenic though. That means I stay on 100% chemo again this week but no MTX tablets as I had it in my back this morning instead.

Last night I went to my first group session with my friends from Ward 27. It was really fun and we played some silly games, asked lots of questions and talked about our feelings It was good to see my friends again and everyone has quite alot of hair so now I know that mine will grow again soon. Ben is 3 months ahead of me and I hardly recognised him because he had so much hair. That means that when I go back to school in September and start year 5, I should have quite a lot of hair again..............Yippeee!!! The next session is in August so I am looking forward to that one too.

Only ½ day of school left tomorrow and then we are off for 9 weeks. Usually when the holidays come I am ill, but I hope not this time.