MONDAY 2ND MARCH 2009
My Daddy's Birthday - but I am not going to tell you how old he is!
Where shall I start? I am on steroids and feel yuk. I had my toe operated on last week and that hurts, my ankle is much better though. I had my verucca frozen off last week with liquid nitrogen - ow ow owwww that hurt lots!!! But I was very brave so it didn't hurt to be fair.
The worse thing is that my hair has decided to fall out again and it shouldn't do that so I am not very happy about it at all. It just decided to come out and it is not fair to me to do that.
That's all.
16th February 2009
I had my cast taken off on Friday instead of Thursday because Mark was in theatre on Wednesday until four o'clock (in the morning) so we thought we would let him have a sleep so we can see him in his best mood!!!!!! When we saw him on Friday he was in his best mood and he cut the cast off with a saw and luckily it doesn't cut skin. After that I could walk on my ankle but it felt really weird. Then I started running down the stairs with sissy snake and I made my ankle hurt again. Now it hurts as much as it did before so we e-mailed Mark and since then its feeling much better so I need to tell Mark.
I am on half term now and I have fun filled week, this is what I am doing: Today I have a blood test (not so good) but then I am going out with granny fish and papa for lunch. On Tuesday I am going to the cinema with auntie Nic Nocs (if my neutrophils) are okay. On Wednesday I am going to the riding stables with my best friend Georgia for the day. On Thursday I am going out with Gillie my great auntie. On Friday I am going to hospital for my 2nd verucca appointment because at my first appointment they didn't have the right potion (liquid nitrogen) to put on my foot so I had to go home. On Friday afternoon I am going down to devon for the weekend. And that is my week. (I didn't tell you what I was doing all week because I wanted to make you jealous, it was just incase I forget what I am doing I can check what I am doing!!! I hope everyone has a good half term.
Monday 9th February 2009
Igloo building at school
Snow girl on the green
Sissy Snake and me (leg in cast!)
Snow girl on the green
Sissy Snake and me (leg in cast!)
Steroids finished the weekend before last but I felt really poorly right up until Thursday last week. Did I tell you about my ankle? I don't think so. Well, you know it was hurting me and I went to see the doctors? They took x-rays and luckily it is not broken - I think I may have told you that bit. Then I went for my regular monthly clinic appointment and Dr Visser thought I really needed to rest it otherwise it would be a big problem for a long time so guess what?!?!? I have had it in plaster for the last 10 days and hopefully it will come off this Thursday. It is difficult to tell whether it feels any better because I can't move it in the cast so we will just have to see! Dr Visser also sorted out a few other things and I will soon be having my toenail operated on because it keeps growing in and he gave me some new pills to have twice a day because my tummy has been hurting and I have felt sick alot. I have had them for a couple of weeks now and they have made me fell much better.
We have had so much fun in the snow. We built an igloo at school, Daddy took us sledging (and he fell off!!!) and Mummy and I built a snow girl on the green outside our house for everyone to see but tonight can you believe this? Emily saw some boys messing about and then they took the head, sunglasses and hat off our snowgirl!!!
Can I just say thank you very much to everyone who sends me letters, cards and presents - I had an amazing cushion sent to me this week with four different pictures of horses made from cross stitch on the front of it. It is gorgeous so thank you very much.
28th January 2009
Guess where Emily, Mummy and I have just been?!?!?!?Strictly Come Dancing Live and we met everyone after the show. It was amazing.
I am so tired now though, so night night!
Tuesday 27th January 2009
Sorry, sorry, sorry
I am so sorry for not updating my blog sooner. I have been very busy and I have been trying to go to school as much as possible. Infact last week I nearly, very nearly, made it through a whole week which would have been the first time since I was diagnosed in June 2007! But anyway, I didn't because my ankle was hurting me sooooooo much so we went to hospital on Friday afternoon to have an x-ray and see the doctors. Unfortunately, the orthopaedic doctors were so busy they couldn't come to see me and we had to wait 3½ hours until they told us they were soooo busy and we would just have to wait. Luckily Mummy's cousin is an orthopaedic consultant so he very kindly came to see me once we got home and checked out my x-rays. I have not broken anything, just strained something and have to rest. I love running and playing sports at school though so it is not so easy for me to rest!!!
Now, whilst I was at hospital, the TV cameras turned up to film Dr Visser and guess what??????? I was on the BBC news on Friday night. Just incase you missed it you can click on here http://news.bbc.co.uk/1/hi/england/leicestershire/7846964.stm and then you can play the clip of the news!!
I am still busy, busy and feeling sort of ok but oh no, oh no, oh no ....................guess what happens tomorrow?????!!!!! S T E R O I D S!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I just know I am not going to be very happy by Thursday and do you know what???????? It is Mummy and Daddy's wedding anniversary and they are going to go out and leave me at home with Granny!!!!!!!!!!!!!
Thursday 8th January
Hi everyone, I have just finished my steroids and woken up this morning and been sick! But now I am feeling much better and ready to go to my friend Lily's house and then tomorrw my best friend Georgia's house . I went to ZIZZI yesterday with Philly phil pot, Guy and Arabella and I saw William, a friend from school . I ate one of my favourite foods when I was first diagnosed "carbonara" that was delicious. I am going to the riding stables on Saturday which will be fun because I have not been in ages. But I did go and see India Pover's horse Spinner on Monday because my sleepover was cancelled with my cousin Molly because she had a cold but I am still sleeping over at her house on Sunday and then staying over and playing all day Monday!! Mummy thinks I am too busy but I dont. I am ready to go back to school now and see all my friends that I am missing so I am looking forward to next Wednesday to do that.
Special messages: I hope Ben and Lucy and everyone on the ward are feeling okay and ready to go back to school. I hope Bethany is still feeling fantastic and Asma is feeling good too.
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