Well, you would not believe how good my blood results are now. My hb is up to 10.4, my platelets 324 and my neutrophils 4.4. It hasn't been that good since I was diagnosed! That means I can join in with lots more things now and I could even going swimming - Yippeeeeee!
I went to school today and stayed for the whole day until 3.30pm and it was not too bad really.
I started my chemo tablets last night and I have to have that every night for the next 18 months. Some times I have 4 tablets and sometimes 2 all depending on my blood results. I also have to have another chemo med once a week and that is 2 huge tablets and 1 little one or 2 little ones and 1 big one depending on my blood.
I feel ok at the moment too. My bones are quite painful and my skin is tingly and a bit sore but otherwise ok. My hair is beginning to grow back too. It was so funny at school today. We were playing a game and the teacher said everyone with blonde hair go to that corner and I said, but I haven't got any hair and everyone burst out laughing! I think it is going to be browny blonde this time but who knows.
We only have this week and next week left of school now and then I will be finishing year 4. Big Sis is leaving school next week to go to her new school so lots of changes for us. It is the school fete next Tuesday which is really fun but I have to be in hospital for a lumbar puncture and bone marrow thingy. I hope I wake up quickly though so I can go to the fete on the way home.
Emily is in the school show this week and we have just come home. It is really good so well done everyone who is in it.
Thank you everyone for leaving me messages and hello to my new friends from Hawaii, Dubai and Canada.
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My new website is now up and running with lots of information about events and what we are up to: http://www.jemimarose.co.uk/ A massive thank you to Ollie Wood for creating such a great site for us.
FUND RAISING EVENTS
DO YOU KNOW SOMEONE WHO IS BEAUTIFUL? Wouldn’t they love a copy of a specially recorded CD, featuring a cover version of James Blunt’s song, “You’re Beautiful” performed by two Stoneygate School pupils Isabel Smith and Jack Gibbs.
Copies available at every drop off and pick up time all next week either in the foyer of the Senior Building or in the Pre –Prep courtyard, at a cost of £2.50 per copy with all proceeds to ‘Jemima Invites’.
Alternatively you can contact either Lynda Gibbs or Kate Smith via stoneygatenews@googlemail.com Thanks to the endeavours of Mrs. Kate Smith, we have the kind permission of James Blunt and EMI Music Publishing to produce and sell this special CD.
Spring Craft Fair in aid of Jemima Invites and a Meningitis charity on Saturday 14th March 2009 from 10am - 1pm at St John the Baptist School, Clarendon Park. Entry £1 for adults, 50p for children and under 5's free. Refreshments available, raffle and 20 or so stalls offering hand made soaps, belts, jewellery, Phoenix cards and much much more.
Christmas Fair in aid of Jemima Invites. Saturday 6th December 10am - 6pm, Sunday 7th December 10am - 4pm
At Great Bowden Village Hall. Plenty for the children to do whilst you shop; face painting, mini manicures, hair curling and plaiting, decorations to make and letters to Santa.
Traditional children's’ pyjamas and nightdresses, stocking fillers, table decorations, Welsh blankets, jewellery and jewellery boxes, rag dolls and children rocking chairs to mention but a few and hot chocolate and mince pies, coffee, tea and cakes throughout the day.
For more details call Ashley on 0797 6517118
Don’t forget your jute bags, £5.00 each or two for £9.00 available from School Office or via the
newsletter at stoneygatenews@googlemail.com
Cheques to Jemima Invites please.
A couple of Stoneygate Dads have completed the NY Marathon and raised over £500. Great effort thank you so much. You can still sponsor them on: www.justgiving.com/jemimanyc2008
Over 60 Stoneygate School children, parents and teachers completed a swimathon at Next Generation on Tuesday 2nd September 2008. We completed an amazing 100810 metres which is 62.64miles!!!!!!!! Children of all ages took part aged 3 and over including Emily and Jemima. To sponsor them go to: www.justgiving.com/channelswimathon We raised a huge £3200
The inaugural Jemima Invites Golf Day was held at Kilworth Springs Golf Club in July and a wonderful day was had by all. Thank you very much to Emma Maziak for her excellent organisation and raising £612.
Davina Merriman's Shop til you Drop day was a huge success and many Mums and daughters did their best to buy as much as possible. Thank you Dav for the huge £1350 raised.
Rosie Jordan went all out to complete the Rutland Water Triathalon on June 21st and did so in a fantastic time. She also raised and amazing £1100. Thank you Rosie!
A team of extremely fit people participated in a triathlon organsied by Lucy and Yanni on July 3rd at Next Generation raising funds for both Jemima Invites and Neuroblastoma. They raised a fantastic £3,500. Well done one and all.
Does your dog need some help with obeying your commands? If so, why not join Stewart North in Great Glen for a course of training. For more information email: workinggundogs@aol.com All proceeds to Jemima Invites. More information to follow.
Auntie Jax and Bans Learoyd organised a fantastic Bingo and Boogie night in their barn in Northants and we all had a fabulous evening. The amount raised was a staggering £25,000 to be split between 3 charities! Amazing effort Jax and Bans. Thank you so much.
Handmade @ Holbrook Craft Sale was a huge success and many people were able to sample the talents of some wonderful local people. Thank you so much Heather for organising such a great event and the donation of £322.
Summer Luncheon and Cookery Demonstration by Rosemary Leech. We had a fabulous day on Tuesday 24th June 2008 and raised £1600. Thank you to everyone who came.
The tennis tournament at Stapleford Park was a huge success enjoyed by both players and supporters alike. There were some excellent tennis players with many close matches which went to tie breaks. Well done to Philly who oraganised the day single handedly and raised an amazing £3000!
The mad cyclists all enjoyed a fantastic day and successfully made it to Brancaster Staithe covering over 100 miles each in around 7½ hours! The sponsorship has nearly hit a jaw dropping £20,000. An amazing effort by all involved. www.justgiving.com/ridetonorfolk
The three crazy ladies completed their 50 mile highland ramble in appalling conditions of hail, snow and rain not to mention to gale force winds! Together they have raised £4,500! www.justgiving.com/highlandramble
The Picnic and Play day at Twinlakes was a huge success. Everyone had a great day out and the weather was very kind. We raised £1320!
The Dance Workshop was great fun and the parents were treated to a wonderful dance show at the end of the morning. We raised £325.
Auntie Nic-Nocs, Debbie, Sam and Venetia hosted the most fabulous Hoby Hop on Saturday night and raised an unbelievable £4,000. Thank you to everyone who came to have a boogey and one of Mart's cocktails in Hoby village hall.
My Granny and Papa's friend, Ann Gilding, swam 70 lengths in Andraitx Pool on her 70th birthday in February - She raised the most unbelievable £2000. Thank you so much Ann and your manager, Malcolm. http://www.justgiving.com/anngilding
Rebecca Marsham, Sophie Wakely and 46 of their friends ran 5K on Wimbledon Common on Saturday for Jemima's Fellowship http://www.justgiving.com/rebeccamarsham1 and raised a staggering £3500. A huge thank you to all the runners for your fantastic support.
Lucy Pover's coffee morning raised an amazing £1000. Thank you very much Luce and to all who attended.
Jemima Invites you to a Cricket Match and Family Fun Day
Amount raised: £4,750
Mike, Mel and Megan Brocklebank ran the Great Kibworth Run ½ marathon on Sunday for Jemima. You can sponsor them on www.justgiving.com/melbrocklebank. They have raised a fantastic £2000!!!
Big Sis Emily also ran the fun run in Kibworth and raised £150. Well done Sissy snake!!!
Lucy Pover's Spinning and Curry night last week caused a few numb bums but raised a fab £250 - thank you to the cyclists!
Auntie Nic Nocs' coffee morning raised an amazing £2,000 and everyone had a great time. Thank you very much Auntie NNs.
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10 comments:
Hello Mima! Its really good that your blood results are so good - remember only 71 weeks to go now... nearly 70! You must have loved it being back and school and you seem to have such a great sense of humour - it's the best way to be Mima! I wonder though whether it is hard to smile through the treatment, but you always seem to come out tops with that grin on your face. Are you looking forward to the holidays? People are thinking of you across the world Mima, - who else can boast friends in Hawaii, Dubai and Canada?? Look after yourself and carry on smiling, lots of love Kathryn xXx P.S. Don't ask about the Morgan training... Morgan's been on strike the last few days, so I'm looking at Scooby as a new candidate for the hoop!
P.P.S. First again! I am honoured x
WOW MIMA...WHAT GOOD NEWS!!
I CAN'T BELIEVE YOUR BLOOD RESULTS ARE SO GOOD. I WAS BEGINNING TO WONDER WHERE YOU'D GOT TO AS WE HADN'T HEARD FROM YOU FOR OVER A WEEK!
I LAUGHED TOO WHEN I READ ABOUT THE GAME YOU PLAYED, I WONDER WHICH CORNER YOU CHOSE?
IT'S A SHAME YOU HAVE TO GO TO HOSPITAL ON TUESDAY WHEN THE SCHOOL FETE'S ON, AND I DON'T SUPPOSE YOU CAN CHANGE THE DATE OF YOUR APPOINTMENT REALLY!
WELL, WE SET OFF FOR WEST MIDLANDS SAFARI PARK LAST SUNDAY FOR DANIELS BIRTHDAY, AND WE GOT 10 MILES FROM THE PARK AND GUESS WHAT........THE CAR BROKE DOWN!!!
WE HAD TO GET TOWED HOME IN A TRUCK WITH OUR CAR ON THE BACK OF IT, SO THE CAR'S BEEN IN THE GARAGE ALL WEEK AS NO ONE KNEW WHAT WAS WRONG WITH IT, AND DO YOU KNOW WHAT IT WAS.... A LOOSE WIRE!!
WELL, DAN HAD A TRAMPOLINE FOR HIS BIRTHDAY, WITH A TENT YOU CAN FIX ON TO THE TOP OF IT, SO HE'S HAVING A SLEEPOVER TONIGHT, BUT I CAN'T SEEM TO FIND OUT JUST HOW MANY BOYS HE'S INVITED! IT'S A BIG TRAMPOLINE, SO I DREAD TO THINK HOW MANY WILL TURN UP!
ANYWAY, I'D BETTER START PREPARING THE GARDEN SO IT'S READY FOR THEM WHEN THEY ARRIVE!
TAKE CARE MIMA,
LOTSA LUV,
MAX
xxx
See, what a special person you are, people from places around the globe are hearign about you and sending you messages! So glad you are feeling better and your blood results are so good. I hope you enjoy the reflexology, I have it every month and it's fabulous. I'm off on holiday next week, but I will catch up with your blog when I get back. I may not post messages that often but you are always in my thoughts. Jan
Hello you gorgeous girl, I know I've seen you but it feels odd not leaving a message for so long so thought I'd post one on. It's Monty's birthday party and guess what - he's sick! Well he's been sick 3 times and is feeling verpy poorly. I have 6 of his friends for the night as I brought them from school but managed to cancel the other 6. Thank goodness for older brothers as I didn't want to play rugby in the stand up pool very much! They're watching a DVD now so it's quiet.... not for long I expect!
I'm so glad your blood is so good - what fantastic news to log on to - and that's great that you had a whole day at school - no one else has been sick there then, like on Tuesday. Have a great weekend and speak soon, lots of love, Jemma Ef xxxx
Hi Mima!! Sorry about bothering you again this week I just had an idea... what about turning your blog into a book? I was thinking because so many people keep writing and saying how much it had touched them... also it would fundraise a bit of money too. What do you think? Hope your ok lots of love Kathryn xXx
P.S. Scooby had a go at the hoop and then Morgan got jealous because Scooby was recieving a treat and attention so he ran over and bit him - then a playfight started and they both ran off!
Aloha Mima....
Great news about your good counts...yeah!! I love that your hair is growing back!! I remember when Mckenna's came back...we were so excited and wondered what color it would be. It came back blonde..and curly. Now its down her back and gets lots of knots...haa haa. I am glad you can still laugh and make funnies...about the situation. It make others realize that anyone can get through this if we keep things easy going. Were rooting for you in Hawaii....maybe you will come this way and we can meet you. We have lots of visitors...and they all love it.
Esp seeing the turtles in the water....and the Dolphins swiming by the boats. Its warm and smells so good here with all the flowers...God bless you, your family and friends. You will beat this just like Mckenna did.
Aloha....
Lisa and Mckenna....
http://www.caringbridge.org/sd/mckenna/
Hola Mima, So happy to learn that every thing is going well at the moment. What a special girl you are! I do not think my comments are reaching you so after this I will send you email. I have spoken to Granny and plan to see you in Sept
. Can't wait to see you all and Digby and the chickens. It is so hot here, too hot to be in the sun!
Always thinking of you.
My love, Rita XXXXXXXXXXXXXXXXXX
Brilliant !
so glad to hear about your good results.Must have made you all very happy when you heard them.When do you plan to take your first swim?
Friends all over the world. Don't forget me in South Africa aswell.
Liked your joke about the hair or rather no hair.
Hope your day in hospital goes well and that you manage to see something of your school fete.
Lots of love
Sue
Hope all is well, Mima, and you are busy with lots of fun things. How is Digby doing with his training?
I'm off on holiday on Friday, on a cruise, so I hope the weather isn't windy or the sea rough, or I may be seasick! I hope you and the family are able to have some holidays and days out. Keep smiling, Mima, and take care.
Jan x
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