Hello Everyone!
I am feeling much better now and am getting used to having my tube.
I was not very well at the beginning of last week. The chemo made me sick and the new feed I was on was too rich for my tummy so I felt very poorly. I went into hospital on Thursday morning and came home yesterday lunchtime. I felt really horrible after I woke up from the anaesthetic on Tuesday and I did not like having the tube in my nose so I tried to pull it out! My throat really hurt and i was so scared that if I talked or sneezed or coughed that the tube would come out so i decided not to talk until Saturday! I had a very nice man come to see me called a psychologist and he did a very clever magic trickwith cards to try to take my mind off my tube. He also said he would help me with my bad dreams, so I like him alot.
The nurses were very kind to me and Mummy. They taught Mummy how to feed me through my tube so now I can have a bag of feed running for 10 hours overnight whilst I am asleep - how cool is that??? when I wake up I am really full!! I can also have all of my medicines in my tube and I can do that myself without any help.
I have been to school today so I am very tired now but I will have a feed now and put my feet up to watch a bit of tv before Emily comes home.
12 comments:
AT LAST...YOUR'E BACK WITH US...ITS SO NICE TO HEAR FROM YOU AGAIN MIMA, I'VE BEEN LOOKING EACH DAY TO SEE IF YOU WERE WELL ENOUGH TO WRITE IN YOUR BLOG! GLAD YOU FEEL ABIT BETTER,AND ARE GETTING USED TO YOUR TUBE,AND I BET ITS ALSO GOOD TO BE BACK AT SCHOOL WITH ALL YOUR FRIENDS?
TAKE CARE, AND DON'T OVERDO IT!
LOTSA LUV, MAX.
You sound much more perky and I'm amazed you went to school today - you truly are fantastic!! I was worried waiting for your up-date so am pleased to be in the picture as I think of you sooooooooo much!!
lots of love,
Emma J. xxx (and love to Mummy,Daddy and Em too!)
Hello Little Star.
I'm glad you are shining again. Last week was soooo......lo..ng and awful for us all without you.
Keep sparkling but also resting and taking care. Well done.
LOL..Guess who.XXXXXXX.
Hi Mima,
Sooooo pleased your home and feeling better, we were all thinking of you lots last week and were very sad to hear that you were still in hospital feeling horrible. Well done for getting to school today and have a lovely cosy evening at home!
Lots of love
Venetia, Paul, Thomas & Hannah
Hi Jemima,
Sorry you had such a bad time last week but really glad you are feeling much better again.
Fantastic that you are starting to learn to play the violin - a very smart violin too!! When you have had a few more lessons you will have to play a tune with Edward on his saxophone;that would be brilliant. We are thinking about you lots and send you, Emily,Mummy and Daddy all our love.
Keep smiling Mima and hope to see you all soon.
Lots of love
Pete,Caroline,Edward, Annabelle and Eloise xx
Hi Mima - we are so pleased you are back at home. What a long week - that tube did not sound very nice at all. Hope you had lots of fun today at school with your friends. Don't overdo it and get some rest. Love to Mummy, Daddy and Emily. Big kisses.
Love Ben, Jax, Daisy & Archie
xx
Hi there
so glad to know that you are back. I wasn't at my office this week and wasn't able to look for an update.
You are incredible and I think going to school was a huge achievement after the week you have just had.You are amazing!!!!
Lots of love
Sue
Hi Mima, you won't know who i am, but i knew your mummy and daddy a long time ago, actually, i think Emily was a small baby when i last saw your mum at the Lawson-Dick's house. Your Mummy grew up with my children's daddy - Justin Marsham, and i think you know Sophie Wakely, (Saskia, Poppy and Noah's Mum) my sis in law (Justin's sis, Lucy Pover's dear friend). anyway, i've been hearing about your story through Sophie, you see, how about that, you're famous down here in London! I've been hearing how brave and strong you are, and how wonderful and supportive your family is, and after reading your fabulous blog, it's clear Sophie's right about all that! your photos are beautiful, keep that gorgeous smile going as much as you can, it's one of the best remedies - i was diagnosed with a cancer 5 years ago, which has all gone away now, and i honestly found that staying smiley and reminding myself of all the good and fun stuff in life kept me strong and got me better, i mean that, it's true.
listen, i have an idea, i've been reading about all these wonderful charity events that people have been doing to raise money to help you, now, i'm a big sucker for charity runs, and i live down here in sunny London where there are LOTS of people who, i'm sure, would be more than happy to don their running shoes to raise some wonga, so why don't you ask Mummy to give me a call, and perhaps, with her guidance, we can organise a sponsored run down here for you? why not ask mummy to email me @ help@igirlfriday.com and we can put our thinking caps on?
cool - Rebecca x
Hi Mima
No more nasal tube nightmare...thats a good phrase you got there! So pleased you sussed it, sounds tricky but Mima will conquer. Hope the rest of the week has been good. Lots of love to you and Mum, Dad and Emily.
Wilsons of Frensham XXXX
Hi Mima!!
How lovely to have you back on line again, I can not imagine how horrible that it all must have been, but once again your wondeful positive spirit bounces right back. Good Girl... you are a star!!
I saw your mum last week and she looked as gorgeous as ever, if a little skinny! I think that she needs that Pizza as much as you do! (Only joking Polly!!!)
We ran two Ladies Lunches to raise money for Breast Care last week, and raised £750 altogether, how cool is that? So you can count me in for any fund raising escapades you come up with!! Although I am not sure how I would feel about a parachute jump, or anything that scarey, I'm a bit old for that kind of thing??!!
Any way, I do hope that you keep feeling bettter, and that the bad bits are fewer and fewer, and disappear into to nothingness very soon.
With your fabulous smile how can they not?
I do hope we see you soon, and when you do decide to come for that Pizza, be sure that mummy lets me know, so that I can be there to make a fuss of you, it is, after all, what I do best!
My mobile number is 0792 1500 787, call me!
Lots of love to you from us,
Sarah xxxx and Lino and The Girls too! xxx
Hi Mima,
I know you are not feeling very well at the moment, but we are all thinking of you lots and lots and hoping that you start to feel better soon.
Mummy said that you are loving the books which is great.
Lots of love
Venetia, Paul Thomas & Hannah XXX
Hi it's me again.Just want you to know that I'm thinking of you alot.
Hopefully you are feeling a bit stronger now and getting used to that new gadget of yours.
Lots of love
Sue
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