16th February 2009
I had my cast taken off on Friday instead of Thursday because Mark was in theatre on Wednesday until four o'clock (in the morning) so we thought we would let him have a sleep so we can see him in his best mood!!!!!! When we saw him on Friday he was in his best mood and he cut the cast off with a saw and luckily it doesn't cut skin. After that I could walk on my ankle but it felt really weird. Then I started running down the stairs with sissy snake and I made my ankle hurt again. Now it hurts as much as it did before so we e-mailed Mark and since then its feeling much better so I need to tell Mark.
I am on half term now and I have fun filled week, this is what I am doing: Today I have a blood test (not so good) but then I am going out with granny fish and papa for lunch. On Tuesday I am going to the cinema with auntie Nic Nocs (if my neutrophils) are okay. On Wednesday I am going to the riding stables with my best friend Georgia for the day. On Thursday I am going out with Gillie my great auntie. On Friday I am going to hospital for my 2nd verucca appointment because at my first appointment they didn't have the right potion (liquid nitrogen) to put on my foot so I had to go home. On Friday afternoon I am going down to devon for the weekend. And that is my week. (I didn't tell you what I was doing all week because I wanted to make you jealous, it was just incase I forget what I am doing I can check what I am doing!!! I hope everyone has a good half term.
Monday 9th February 2009
Igloo building at school
Snow girl on the green
Sissy Snake and me (leg in cast!)
Snow girl on the green
Sissy Snake and me (leg in cast!)
Steroids finished the weekend before last but I felt really poorly right up until Thursday last week. Did I tell you about my ankle? I don't think so. Well, you know it was hurting me and I went to see the doctors? They took x-rays and luckily it is not broken - I think I may have told you that bit. Then I went for my regular monthly clinic appointment and Dr Visser thought I really needed to rest it otherwise it would be a big problem for a long time so guess what?!?!? I have had it in plaster for the last 10 days and hopefully it will come off this Thursday. It is difficult to tell whether it feels any better because I can't move it in the cast so we will just have to see! Dr Visser also sorted out a few other things and I will soon be having my toenail operated on because it keeps growing in and he gave me some new pills to have twice a day because my tummy has been hurting and I have felt sick alot. I have had them for a couple of weeks now and they have made me fell much better.
We have had so much fun in the snow. We built an igloo at school, Daddy took us sledging (and he fell off!!!) and Mummy and I built a snow girl on the green outside our house for everyone to see but tonight can you believe this? Emily saw some boys messing about and then they took the head, sunglasses and hat off our snowgirl!!!
Can I just say thank you very much to everyone who sends me letters, cards and presents - I had an amazing cushion sent to me this week with four different pictures of horses made from cross stitch on the front of it. It is gorgeous so thank you very much.
28th January 2009
Guess where Emily, Mummy and I have just been?!?!?!?Strictly Come Dancing Live and we met everyone after the show. It was amazing.
I am so tired now though, so night night!
Tuesday 27th January 2009
Sorry, sorry, sorry
I am so sorry for not updating my blog sooner. I have been very busy and I have been trying to go to school as much as possible. Infact last week I nearly, very nearly, made it through a whole week which would have been the first time since I was diagnosed in June 2007! But anyway, I didn't because my ankle was hurting me sooooooo much so we went to hospital on Friday afternoon to have an x-ray and see the doctors. Unfortunately, the orthopaedic doctors were so busy they couldn't come to see me and we had to wait 3½ hours until they told us they were soooo busy and we would just have to wait. Luckily Mummy's cousin is an orthopaedic consultant so he very kindly came to see me once we got home and checked out my x-rays. I have not broken anything, just strained something and have to rest. I love running and playing sports at school though so it is not so easy for me to rest!!!
Now, whilst I was at hospital, the TV cameras turned up to film Dr Visser and guess what??????? I was on the BBC news on Friday night. Just incase you missed it you can click on here http://news.bbc.co.uk/1/hi/england/leicestershire/7846964.stm and then you can play the clip of the news!!
I am still busy, busy and feeling sort of ok but oh no, oh no, oh no ....................guess what happens tomorrow?????!!!!! S T E R O I D S!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I just know I am not going to be very happy by Thursday and do you know what???????? It is Mummy and Daddy's wedding anniversary and they are going to go out and leave me at home with Granny!!!!!!!!!!!!!
Thursday 8th January
Hi everyone, I have just finished my steroids and woken up this morning and been sick! But now I am feeling much better and ready to go to my friend Lily's house and then tomorrw my best friend Georgia's house . I went to ZIZZI yesterday with Philly phil pot, Guy and Arabella and I saw William, a friend from school . I ate one of my favourite foods when I was first diagnosed "carbonara" that was delicious. I am going to the riding stables on Saturday which will be fun because I have not been in ages. But I did go and see India Pover's horse Spinner on Monday because my sleepover was cancelled with my cousin Molly because she had a cold but I am still sleeping over at her house on Sunday and then staying over and playing all day Monday!! Mummy thinks I am too busy but I dont. I am ready to go back to school now and see all my friends that I am missing so I am looking forward to next Wednesday to do that.
Special messages: I hope Ben and Lucy and everyone on the ward are feeling okay and ready to go back to school. I hope Bethany is still feeling fantastic and Asma is feeling good too.
WEDNESDAY 24TH DECEMBER 2008
NEARLY, VERY VERY NEARLY CHRISTMAS!!!
Well, I have had my LP and Dr Madi decided it was best to keep giving me the ITMTX eventhough it may be irritating my brain. If I have another seizure then Mummy and Daddy and Dr Madi will have another talk about it but just now I am ok. My nurses have been very naughty though..................do you know what happened???? Well, last week Julie took my blood and put it in an orange bottle but it went to the wrong hospital so they lost it so then I had to go to hospital the next day for another blood test. That means my port in my chest has to be accessed (a big needle stuck into my chest) twice in two days......ouch ouch ouch! Then do you know what happened this week................Julie took my blood and it went in an orange bottle again and the hospital it went to lost it AGAIN so Corinne had to come today to take some more so that is another needle just a day after the last one. My port is really sore now and is quite fed up with being poked and is really really bruised so we are going to have a rest next week and just take my blood from my hand instead - yukkkkkkk!
We have been very busy, I finished school last week and had a big carol service which was cool. The week before we had a Jemima Invites Carol Service at Oakham School and I read from the bible. I really loved doing that eventhough there were over 420 people in the chapel!
I have had my friend Georgia over to play and we are all just about ready for Christmas now. Emily and I are sooooooooooooooooooooooooooooooooooooooooooooooooo excited we have decided to go to bed early tonight so that Santa can come quickly!!! We are going to meet our cousins in the pub first and then rush home to bed. Can't wait, can't wait can't wait. Then tomorrow we have Auntie Nic Nocs, Uncle Y'Ed, Hattie, Max and Tilly, Auntie and Uncle Geoff, Auntie Dottie and Uncle Maurice, Granny and Papa, Mummy, Daddy, Emily and Me for Christmas day Yiiiipppeeee!!!
Have fun everyone and happy, happy christmas!!!
Tuesday 9th December 2008
This is me and my school friends at the school disco. It was such fun and I danced with some of the boys too!!!
I have been on steroids and felt really yuk but now I have a cough and cold and feel even more yuk. I feel like I have low hb but apparently I don't. My legs hurt too. I went to school today but only for a couple of hours and I could hardly lift my head off the desk. Daddy picked me up and then when Mummy came home we went on a walk to get some fresh air with Digby. We went through the fields and down by the brook and Digby was really funny jumping in and out of the brook.
My arm is getting more and more better but one of the stitches from inside which was meant to dissolve has popped out and is really annoying. Nurse Julie tried to cut it off yesterday but it won't come off so I am just being careful with it. I can move my arm quite well but it is still sore.
We went to the ward 27 christmas party on Sunday and I saw lots of friends but most of us were on steroids so we were not very sociable. I wore my angel outfit and won a prize for most creative outfit! Thank you to all the nurses who made it such a good party.
I am meant to be going to Lapland on Friday but I have decided not to go because my arm is still too sore. We get to go on husky sleigh rides and snow motorbike thingys but I just wouldn't want to because I might bump my arm so I am not going. I didn't go last year either because I was poorly so I hope to be able to go next year.
Special message: Hello Rick, Jacquie and Mike!
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