Monday 22nd September 2008

I am feeling good at the moment!

Tomorrow I am going in to hospital to have a general anaesthetic for a lumbar puncture which is where the doctor takes some spinal fluid and gives me some chemo into my spine. It is all over quite quickly and doesn't really hurt very much. I have to be nil by mouth though and be in hospital for 8.30 am. The worst bit is waiting until I go in to theatre because you just don't know when it will be. I hope I will be first on the list and then I don't have to wait too long. When I wake up, I have to lie down for at least an hour so that the chemo doesn't give me a massive headache. I usually watch a movie so Mummy has bought me a new one to take in called Game Plan.

I hope I will see some of my friends on the ward tomorrow, it is much better if there are people there you know. Maybe Lulu is in for an LP too or Ruby? Who knows.

Wednesday 17th September

This is me and my friends at the sponsored swimathon - I think we raised loads of money.

I feel much much better!

I have been to school this morning and really enjoyed it. I had spaghetti bolognaise for lunch which was yummy and we did science (my favourite), maths and english. I think Wednesdays are my favourite days.

All my year have gone to play netball matches this afternoon so I am going to watch Emily play in a hockey match at Oakham. She is really excited because she is in the A team.

I think tomorrow will be a good day too!!! Yippeee!!!

Tuesday 16th September 2008

I still feel poorly and my skin hurts too. I have not been to school since Thursday because I have felt too poorly. Never mind, I hope I will be better tomorrow.

Thursday 11th September

My first week back at school was great. Being in year 5 is sooooo cool! I have a lovely teacher called Mrs Hayden and she is really kind. We are in the senior building now and have to be very grown up!
I AM ON STEROIDS AND FEEL HORRIBLE!!! My legs hurt, my head hurts, my face is all red and my eyes are sore. I feel really tired and totally rubbish.
I am doing my homework which is really hard and I don't want to do it.
I could do with some letters from Postpals to cheer me up.
French homework to do now but I don't think I will go to school in the morning because I feel YUK!
No colours because I don't feel like it.

We're Back!!!

This is me and Emily with my cousins Kianna and Lauren on holiday in Devon

We have just come home from just over 2 weeks away and had a really fun holiday. It rained, it was windy, it was cold and I think I remember the sun came out once but we still did loads. We body boarded, sailed, swam, crabbed, fished, cooked mussels on the beach again and even had a picnic in the woods yesterday where we had to collect the wood to make a fire and then cooked sausages, ribs and burgers followed by a game of kick the can!

I have felt well most of the time apart from when I was on steroids and my legs and ankles have not hurt too much. My blood results were a bit low last week so I have not had any chemo at all since last Tuesday so Mummy hasn't had to wake me up to take pills so that has been really good. I will have another blood test tomorrow to see what I will be on this week.

Only one more week before I go back to school and in to a new class and the senior part of the school. I am very excited and Emily says my teacher is really nice. Emily starts her new school on Friday and I am going to really miss her.

Busy, Busy, Busy

Emily and I are sailing at Rutland Water this week ready for our holiday in Devon next week. It has been really fun so far and a good wind so we are learning loads. Apart from a few aches and pains, I feel really well. I had to pop in to hospital yesterday afternoon because I have conjuntivitus but other than that I am fine.

Vincristine and steroids tomorrow yuk, yuk, yuk but hopefully it won't be too bad for my holiday.

The really exciting news is that my uncle and aunt and my cousins are on their way over from Hawaii to have a holiday with us in Devon. We have not seen Uncle Simon and Kianna (my cousin) for 2½ years and we have not seen Auntie Lisa, Brandon and Lauren (my other cousins) for 5 years!!!!!!!!!!!!!! We are all sooooooooo excited!!!!!!!!! I hope the sun shines for them.

We're home!

Hello Everybody!

I have just been on holiday to Brancaster Staithe for a week with the Povers and the McCormacks. I had a fab time and Millie, Flora, Issy an Ed let me go in their pool every day and let me sail their Topper too. We went to the beach every day and it was really sunny.

This week Emily and I are off to Debbie's for Pony camp and Debbie said we can sleep over too. We can't wait!

Next week we are sailing for 4 days doing our RYA stage 4 again and then learning how to sail with spinnakers. Yippeeeeeeee. I hope it is windy enough!!!

Oh yes, I feel really well too. My toe is much better now and I am not on steroids anymore so not much bone ache. I have vincristine on Wednesday and start on the dreaded steroids again which is one week early because we are going to Devon for 2 weeks at the end of next week and I can't have vincristine whilst I am there.

Friday 18th July 2008

I had a fantastic day today.

Wishes4kids held a day at Donington Park for all the children they have granted wishes for (remember they gave me an amazing day out at Strictly Come Dancing). I took my friend Georgia because Emily was busy and we went in so many really really fast cars. I went 100 miles per hour in a Caterham with a nice man called John driving, it was a bit scary but very fun too. We had a yummy lunch and tea and got to play on a huge scalectrix and I drove in an F1 simulator car. I saw lots of my friends from ward 27 and had a fantastic day.

I am on steroids again and I feel so yuk. I am really really tired, hungry all the time, cross and I can't sleep but other than that I am fine! My friend Georgia was really kind to me today because she knows what I am like on steroids. Thank you Georgia.

Thank you very much Russell and Wendy for such a good day.

Message from Mummy for Kirsty - Nicole Dryburgh is who she was talking about and her web address is http://www.c-h-o-c.org.uk

I am not using colours today because I don't feel like it.

Sunday 13th July 2008

I am really well!

Apart from just a few aches and pains. I have been very busy, helping out at the riding stables but I was very tired yesterday because I had so much to do. I fell over a couple of times but I am ok. I am going to do two full days next week because there are pony days at the stables and Debbie needs lots of help.

We have had a fantastic day today. It was the Kirby and Desford Tennis Tournament for the juniors and Emily and I both played. It was really fun and we had a swim afterwards then yummy tea and a disco. At the end of the day I had a really big treat because the lady who lives at the house where we had tea has a tiny pony and trap and I had a ride on it, it was great fun. Mummy wants to get a trap so Digby can take us for rides!

I am going to have some IV chemo on Wednesday and start the dreaded steroids again for 5 days - yuk, yuk, yuk. I am going to see Dr Madi aswell and I am going to tell him about my sore ankles and my arm which hurts again now. Last time I saw him he thought it would be a good idea to have an xray to see what my bones look like so maybe I will have that this week. Who knows?

Thursday 3 July 2008

Well done to all the Triathlon people today (and Rosie a couple of weeks ago).

I had my LP, ITMTX and BM this morning and it all went very well and I woke up feeling a bit sore on my back but mostly fine. My blood results haven't really changed much other than my neutrophils have gone down. I am not neutropenic though. That means I stay on 100% chemo again this week but no MTX tablets as I had it in my back this morning instead.

Last night I went to my first group session with my friends from Ward 27. It was really fun and we played some silly games, asked lots of questions and talked about our feelings It was good to see my friends again and everyone has quite alot of hair so now I know that mine will grow again soon. Ben is 3 months ahead of me and I hardly recognised him because he had so much hair. That means that when I go back to school in September and start year 5, I should have quite a lot of hair again..............Yippeee!!! The next session is in August so I am looking forward to that one too.

Only ½ day of school left tomorrow and then we are off for 9 weeks. Usually when the holidays come I am ill, but I hope not this time.