12 DAYS TO GO!!!
Happy Birthday Emily!!!
Sunday 18th October 2009
ONLY 16 DAYS TO GO UNTIL I FINISH TREATMENT!!!
We are all getting very excited and counting down the days now until I finish treatment for Leukaemia. I have had my last lumbar puncture for ITMTX, my last vin and christine was last Wednesday. I am finishing my last steroids tonight and then it will just be a final lumbar puncture and bone marrow aspirate on November 3rd with daily chemo, weekly chemo and antibiotics every weekend up until then.
I have to tell you though that I have been back in to hospital for a couple of days because I had another seizure at school on Thursday two weeks ago. The Neurologist has decided to put me on some anti-seizure tablets now and I have to have them for 2 years!!!!!!(They called it epilepsy) I don't mind though if it means I don't have any more seizures. The last one really frightened me and I was at school, so even worse.
I am now counting down every day and we are going out for lunch today and I am really excited. I am going to ring Daddy at 12.00 because that is the time we should be meeting him at the restuarant.
P.S just because I have a name for all my seizures it doesn't mean that you should treat me any differently than before I was diagnosed with epilepsy. I am still just the same old Mima and you shouldn't be scared of me.
love mima xxx
THE BEST SUMMER EVER!
DON'T MISS THE ARTICLE AT THE TOP OF THE PAGE ABOUT THE RESEARCH JEMIMA INVITES HAS NOW FUNDED - THANK YOU EVERYONE WHO HAS CONTRIBUTED TO THE TWO YEARS OF FUNDRAISING!
I have had the best summer ever!
We have done so many fun things, I am not sure you or I have the time to think about them all!!!
We had a fab 2 week holiday in Devon with the Wheelers, we sailed, body boarded, swam, bbq'd, kayaked, ate ice creams, fish and devon cream teas ............................. it was all just amazing.
When we came home we did alot of riding and more sailing and then last week we went to Holkham beach for the day and rode on the beach which was absolutely amazing!!!
I go back to school this Thursday and I cannot believe the summer is over. I am really looking forward to seeing all my friends again and starting in year 6!
I hope you have all had a good summer too.
Tuesday 21st July
Hello everyone.
This is my new passport photo. Did you know, you are not allowed to smile or show your teeth in a passport photo! My passport ran out in May and we are not planning on going anywhere but just in case we feel like flying off somewhere when my treatment is over, we thought we had better be organised and have a passport!
I am slowly recovering from steroids....and can't wait until we all go down to Dartmouth. I am so looking forward to going body boarding and am especially looking forward to going to the FBI to have another amazing steak like they cooked me last time.
Tomorrow I am meeting up with a few friends and we are going to The Wistow Maze for the day, I can't wait. As always, I have a busy schedule for the holidays. I am going to The Wistow Maze tomorrow, helping at my local riding stables on Thursday for the day and to see my fave pony Nicky Noo Noo, going to my BFF's house on Friday to do some girly stuff!!! Saturday I am going back to the riding stables again, Sunday granny and papa were taking me and Em out for lunch (but we can't go because of Swine Flu, so Granny will be cooking for us at home whilst Mummy and Daddy play golf - boooorrring!) and that's only one of my weeks!!! I still have play dates to arrange with Vicky, Faffy, Freya and Fi Fi. I am getting bored of all this swine flu business because I can hardly go anywhere. I can't go to the cinema, swimming pool, restaurants, the supermarket, into town or even near Daddy now because he has two employees with swine flu. I wonder if I will get it? Let's hope not. I am counting down till end of treatment only 3 more steroids!!!
Mummy on the other hand (I think) is getting a bit fed up of the summer holidays already....(because of all the rain).....but is coping well with mine and Emily's late night summer holiday moods!!!
Oh yes, I nearly forgot something else we are doing is having the Jemma Effersons over for dinner on Friday night and that will be really good fun.
MONDAY 13TH JULY 2009
This is me at Twin Lakes on the school trip!I am having such fun so far this holiday and have been feeling pretty good. I am off to clinic on Wednesday for steroids and some vin and christine but we have to go to the ward to lower the risk of catching swine flu. My family are all very worried about swine flu because if I get it it would be very bad news. Anyway, no time to worry about that, I am busy having a fun holiday!!!
Thursday 18th June 2009
I am just going to tell you something which is really annoying me:
I would really really really like to go on a school trip and my choir are going to France for a few days next week but I can't go because I have Leukaemia and have to take too many pills and stuff like that but now something else has happened. My year are going on a school trip to Twin Lakes next week and because of my funny head thingys and because I have had a few absence episodes since my last ITMTX two weeks ago, it means that Mummy has to come with me on our trip. It just is not fair and I really want to go on my own and be with my friends.
I am angry! Oh yes, and I am on steroids!
Monday 15th June 2009
Two years ago today I started my treatment!
All I remember is feeling very poorly all the time. I had to have my bloods taken every 6 hours and a horrid pink medicine to protect my kidneys every 8 hours, I had a drip constantly for 2 weeks and had a general anaesthetic two days in a row and then once a week for the first month and loads of vin and christine, the horrible asparagus and mayonnaise jab in my leg and so much dexamethasone (steroids) I was starving and angry all the time! What a horrible time that was but at least we can forget all that now.
I am really well at the moment and enjoying lots of school, parties, rounders matches, and a lot of tennis in our garden! We have had our school exams and I did ok so that's good. We had a drama workshop for the parents last week and I read a poem about Friends which I loved and we are doing it again for some other children from a different school who are visiting us this week.
We have sports day on Friday but I won't be doing much because I can't really run very well as it hurts my ankles but it is a fun day anyway. Then we have our school fete which is just about the best day all year and I have a stall with some friends which will be great fun.
Sorry if I don't write very often these days but don't think it is because I am not well, it is because I am very well!!!
Wednesday 20th May 2009
Busy, Busy, Busy
I am so sorry I have not updated my blog for a month but I have been really well and very busy!
Sadly, I am on steroids again now which started today so I will probably be a bit grumpy and hurting and feeling horrid by tomorrow afternoon. Never mind, only 5 more lots to do!
Now then, if you can, you must sponsor my Daddy's friend Willie. He is a bit mad and he is doing a big, big challenge called the three peaks challenge. www.justgiving.co.uk/williecarrjemimainvites
Thank you very much!
We went to see Dr Madi today and it was really funny because we go in to his office and he asks how I have been and usually I say well I broke my arm or put it through the window or my ankles are bad or I fell off a horse or something like that but today I just said I am very well thank you and he said that was very good to hear and it was the first time in 2 years I had said that! Do you know, we were in and out of the hospital having seen Dr Madi, had a full check up, had chemo and had my needle taken out, collected my new drugs, had a cup of tea all within 45 minutes! Record time!!!
Thursday 16th April 2009
This is me and my bff Georgia when we went climbing with Guy and Eddie. Don't laugh at our hats!!!I have been feeling pretty good for the last couple of weeks, apart from a bad cold and cough, cough, cough, cough, cough - that is what I have been doing, all day and all night!
Now, what have I been up to????????????? Well, I have been riding, cycling, sailing, climbing, dog walking, sleep over with friends, pottery painting and out to the cinema (twice). I had a fab birthday and Easter was pretty scrummy too!
Back to school on Monday and I can't wait to see all my friends. I am hoping to have a go at guitar lessons this term too.
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