Guess where Emily, Mummy and I have just been?!?!?!?Strictly Come Dancing Live and we met everyone after the show. It was amazing.
I am so tired now though, so night night!
Tuesday 27th January 2009
Sorry, sorry, sorry
I am so sorry for not updating my blog sooner. I have been very busy and I have been trying to go to school as much as possible. Infact last week I nearly, very nearly, made it through a whole week which would have been the first time since I was diagnosed in June 2007! But anyway, I didn't because my ankle was hurting me sooooooo much so we went to hospital on Friday afternoon to have an x-ray and see the doctors. Unfortunately, the orthopaedic doctors were so busy they couldn't come to see me and we had to wait 3½ hours until they told us they were soooo busy and we would just have to wait. Luckily Mummy's cousin is an orthopaedic consultant so he very kindly came to see me once we got home and checked out my x-rays. I have not broken anything, just strained something and have to rest. I love running and playing sports at school though so it is not so easy for me to rest!!!
Now, whilst I was at hospital, the TV cameras turned up to film Dr Visser and guess what??????? I was on the BBC news on Friday night. Just incase you missed it you can click on here http://news.bbc.co.uk/1/hi/england/leicestershire/7846964.stm and then you can play the clip of the news!!
I am still busy, busy and feeling sort of ok but oh no, oh no, oh no ....................guess what happens tomorrow?????!!!!! S T E R O I D S!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I just know I am not going to be very happy by Thursday and do you know what???????? It is Mummy and Daddy's wedding anniversary and they are going to go out and leave me at home with Granny!!!!!!!!!!!!!
Thursday 8th January
Hi everyone, I have just finished my steroids and woken up this morning and been sick! But now I am feeling much better and ready to go to my friend Lily's house and then tomorrw my best friend Georgia's house . I went to ZIZZI yesterday with Philly phil pot, Guy and Arabella and I saw William, a friend from school . I ate one of my favourite foods when I was first diagnosed "carbonara" that was delicious. I am going to the riding stables on Saturday which will be fun because I have not been in ages. But I did go and see India Pover's horse Spinner on Monday because my sleepover was cancelled with my cousin Molly because she had a cold but I am still sleeping over at her house on Sunday and then staying over and playing all day Monday!! Mummy thinks I am too busy but I dont. I am ready to go back to school now and see all my friends that I am missing so I am looking forward to next Wednesday to do that.
Special messages: I hope Ben and Lucy and everyone on the ward are feeling okay and ready to go back to school. I hope Bethany is still feeling fantastic and Asma is feeling good too.
WEDNESDAY 24TH DECEMBER 2008
NEARLY, VERY VERY NEARLY CHRISTMAS!!!
Well, I have had my LP and Dr Madi decided it was best to keep giving me the ITMTX eventhough it may be irritating my brain. If I have another seizure then Mummy and Daddy and Dr Madi will have another talk about it but just now I am ok. My nurses have been very naughty though..................do you know what happened???? Well, last week Julie took my blood and put it in an orange bottle but it went to the wrong hospital so they lost it so then I had to go to hospital the next day for another blood test. That means my port in my chest has to be accessed (a big needle stuck into my chest) twice in two days......ouch ouch ouch! Then do you know what happened this week................Julie took my blood and it went in an orange bottle again and the hospital it went to lost it AGAIN so Corinne had to come today to take some more so that is another needle just a day after the last one. My port is really sore now and is quite fed up with being poked and is really really bruised so we are going to have a rest next week and just take my blood from my hand instead - yukkkkkkk!
We have been very busy, I finished school last week and had a big carol service which was cool. The week before we had a Jemima Invites Carol Service at Oakham School and I read from the bible. I really loved doing that eventhough there were over 420 people in the chapel!
I have had my friend Georgia over to play and we are all just about ready for Christmas now. Emily and I are sooooooooooooooooooooooooooooooooooooooooooooooooo excited we have decided to go to bed early tonight so that Santa can come quickly!!! We are going to meet our cousins in the pub first and then rush home to bed. Can't wait, can't wait can't wait. Then tomorrow we have Auntie Nic Nocs, Uncle Y'Ed, Hattie, Max and Tilly, Auntie and Uncle Geoff, Auntie Dottie and Uncle Maurice, Granny and Papa, Mummy, Daddy, Emily and Me for Christmas day Yiiiipppeeee!!!
Have fun everyone and happy, happy christmas!!!
Tuesday 9th December 2008
This is me and my school friends at the school disco. It was such fun and I danced with some of the boys too!!!
I have been on steroids and felt really yuk but now I have a cough and cold and feel even more yuk. I feel like I have low hb but apparently I don't. My legs hurt too. I went to school today but only for a couple of hours and I could hardly lift my head off the desk. Daddy picked me up and then when Mummy came home we went on a walk to get some fresh air with Digby. We went through the fields and down by the brook and Digby was really funny jumping in and out of the brook.
My arm is getting more and more better but one of the stitches from inside which was meant to dissolve has popped out and is really annoying. Nurse Julie tried to cut it off yesterday but it won't come off so I am just being careful with it. I can move my arm quite well but it is still sore.
We went to the ward 27 christmas party on Sunday and I saw lots of friends but most of us were on steroids so we were not very sociable. I wore my angel outfit and won a prize for most creative outfit! Thank you to all the nurses who made it such a good party.
I am meant to be going to Lapland on Friday but I have decided not to go because my arm is still too sore. We get to go on husky sleigh rides and snow motorbike thingys but I just wouldn't want to because I might bump my arm so I am not going. I didn't go last year either because I was poorly so I hope to be able to go next year.
Special message: Hello Rick, Jacquie and Mike!
Friday 28th November 2008
Rachel and Isla sent me this balloon to cheer me up and it really worked - thank you very much!Stitches Out!
O.M.G! I was so anxious but it all went well and I was home that night with steri strips and a bandage on my arm feeling very sorry for myself! My nurse Julie had a good look at it on Tuesday and she was very happy that all the wounds were healing nicely and there is no sign of infection. Yippeeeee! I am really proud of myself because last night I took the bandage off and slept with nothing on it at all. Today I am going to school with nothing on it so wish me luck!!!
I have not had any chemo for two weeks because when I cut my arm I lost a lot of blood and my hb and neutrophils dropped alot and the chemo makes them low too so Dr Madi decided it was best not to have it for a while or until my bloods are better. This week the hb is climbing again but my neutrophils are still quite low - 0.6, so no chemo again. It is quite good actually because I have to take the chemo after my evening meal and at least an hour after milky things and I really like to have a glass of milk before bed so usually Mummy has to wake me up when she goes to bed and I don't like to take pills when I am sleepy.
I am so excited today because we have our school disco this afternoon. I am wearing my new Ted Baker dress and Mummy bought me some purple sparkly nail varnish after I had my stitches out because I was so brave so I have painted my nails too. I can't wait!!!
Ems is singing in a concert tonight at Oakham so we are all going to watch her. I hope she sings well! Then on Sunday I have a birthday party to go to which is a Mamma Mia party and I llllllooooovvvvveeee Mamma Mia. I'll tell you all about it next week.
We decided this week that if I hadn't had seizures, broken my arm or put my other arm through the window that actually I would have been quite fine with just Leukaemia so far! Better be careful for the next year and then I will be able to ride and swim and run and dance and play and everything else I miss with my friends.
Oh yes, just remembered........................... clinic on Wednesday for vin and christine and yuk yuk yuk steroids for 5 days. At least it will be over for Christmas!
Monday 17th November 2008
I am back home again!
Well, I have had my first ride in an ambulance now and had the blue flashing lights on too! It was very exciting, shame I don't remember it!!!
What happened was, I put my arm through the glass door by the front door just as we were about to leave to go to my ballet show but oh deary me no, I was not going to the ballet show any more, I told Mummy to call 999 and then we had to wait and wait and wait for the paramedics to come and then wait and wait and wait again for the ambulance to come to take me into A & E! There was blood and glass all over the floor and my arm was hanging off in pieces - yuuuuukkkk!!!
Anyway, on Friday morning I was put to sleep for an operation to sew my arm back together again and it took 2½ hours and I now have 30 stitches in 2 wounds and another wound which is glued together. The doctors have put my arm in half a plaster so I can't stretch the stitches but the good thing is it is my left arm this time so I can still do some things with my right.
I had to stay in hospital since Thursday night to have lots of IV antibiotics and to make sure my arm was ok. I had lots of fun though because my friend Lucy was there too because she had a bit of a temperature. Neither of us felt really ill so it meant we could just hang out together and watch movies or play in the playroom. We had a big curry on Saturday night and watched Strictly and X Factor. Lucy and I had a real laugh singing Angels into snooker cues and dancing like Ruth!
My arm feels much better now and I am having the stitches out next Monday. I am neutropaenic and have very low hb so Mummy has to keep a very close eye on me and no chemo until next week when hopefully my bloods will have recovered.
Monday 10th November 2008
Lots of people ask me what it is like when I am on steroids so I wrote a poem.
STEROIDS
My life is annoying
Everyone tries to help
It doesn't make it better
Especially when
on the fourth week
they kick in again!
My bones start to hurt
I am starting to moan
My Mum tells me stop
and my Dad tells me NO!
I say to them 'no way,
I am not taking them,
They make me feel poorly
don't try me again.'
It comes to the time
I have days off school
Mums friends all come round
oh what a to do
I can't interact
Mum says
'say hello'
and that was that
Now they've all gone
I go to my room
To let out the anger
I paint a balloon
But Mum has a problem
I didn't paint it on there
It was onto my nails
In bright orangey pear
She said to me now
what was that for?
I say, it's the fashion
She said 'Oh, tell me more!'
I go back downstairs
and talk to the dog
I do have my own life
but then, maybe not.
By Jemima Sellicks age 9
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