Thursday 17th January 2008

Asparagus and Mayonnaise for tea!

That is what I had today in an injection into my leg muscle - ooooowwww! that really hurts. Then I had some Vin and Christine into my line and some more blood taken because I still feel very sleepy and my legs aren't working very well.

I went to school for half a day on Tuesday and all day on Wednesday and then half a day again today but I get soooo tired. When we were coming home from the hospital this afternoon I fell asleep in the car and couldn't wake up to do my homework!

One more vin and christine next Thursday and then I am at the end of this block of treatment and will start back on escalating capizzi for another 9 weeks. I don't like escalating capizzi much because it made me really poorly last time and my mouth and lips were very sore with ulcers and I was in hospital alot.

Friday 11th January

Blood Transfusion

I had to have another blood test today as my hb is low. I have not been feeling too good today so I didn't go to school. I am so tired and my legs just won't work.

Guess what the blood results said ...................... yes I have to have a blood transfusion tomorrow. Well actually, the hospital wanted me to go tonight but I am too tired to go so we will go tomorrow. I have to have some more chemo tomorrow in hospital anyway, so now I will have it all at the same time.

Wednesday 9th January 2007

Back to school - aaaaaaaaaaaaarrrrrrrrrrrrrrrrrrggggggggggggghhhhhhhhhhh!

School started again today but I couldn't go first thing because I had a blood test at home. Then when I did go it was good. I wasn't looking forward to it much because I like being at home with Mummy but it was good.

My treatment started again last Thursday and I have been quite well apart from feeling sick most of the time. The chemo finished on Monday and then I had yesterday and today off but have to go back to hospital tomorrow for another sleep and IT MTX then chemo everyday until Tuesday again. My blood results were not too good today so I will probably be having a transfusion very soon. My hb was 8.2 and usually you get some more blood when it goes to 8. My neutrophils are 0.4 so that means please don't come near me with any germs or I will be poorly. But my platelets are good.

Now lots of people have been asking what I had for xmas so I will tell you. I had lots but here is some of what I had. Paper FX to weave recycled paper and make pots or bags out of, Digimakeover, well what you do is take a picture of you or someone and plug it in to the tv then you can put hair or makeup and jewellery on, it is cool. I had a really nice charm bracelet and some charms of a pony, a heart and an elephant with a diamond eye! My big cousins gave me a lovely necklace, my godfather gave me a fabbbbbbb fur coat and oh I had so much more too.

I have just had a really big tea because I am nil by mouth from midnight and I don't like waking up hungry. Night night xxx

Wednesday 2nd January 2008

HAPPY NEW YEAR!!!

I have had a really good week. As you know my blood results last week were not good enough for me to start my treatment again but that meant that I had another week off so we were very lucky and invited to Norfolk for a couple of days. We stayed with some very good friends called Penny and Adam and two of their children, Millie and Flora. oh yes and their dog Lottie who is our dog Digbys sister. Their dad Charlie was there too as his owners Lucy and Ashley came too with their two children. We had great fun on the beach with all the dogs and i walked for miles both days. The sea was a bit cold but we did see some people swimming! It was really fun and good to be back in Norfolk because we didn't go in the summer at all.

Now then I had my blood taken this morning and Katie rang to tell me that it was fine so I could start again tomorrow so that is what I am doing. I have to be in for 8 .30am for a general anaesthetic so the doctors can give me an injection of chemo into my spine (IT MTX). Thats ok but then I have to have chemo into my line for FOUR hours. I will feel really really sick and probably be sick too. I will have a nurse visit at home every day for 4 days to give me some chemo into my line then it starts again the next Thursday with a general and IT MTX then 4 more days of chemo at home and while that is all going on I have to take some more chemo for two weeks oh yes and the yuk weekend medicine but now I can swallow tablets that is nowhere near as bad. I started taking some multivitamins today too which I swallow just in case i don't get enough from the food I eat. Then after that is the aaaarrrrgggghhhh asparagus and mayonnaise in the leg and a bit more vin and christine then another week and another vin and christine and then finished for that block. Guess what happens then????? back to escalating capizzi - loads of meds all over again.

FRIDAY 28TH DECEMBER 2007

I love Christmas!!!

We have had a really good Christmas and I have been very well too but when Julie came to take my blood on Boxing Day the results were not good enough for me to start treatment again so I am having another break for a week. Mummy is quite pleased about that though because I have a cough and a cold and she hopes that in a week I may be alot better.

We have been able to do loads because I have been well. We went to see Beauty and the Beast at the theatre which was really good and then went to Enchanted at the cinema too and I loved that. I have been for lots of bike rides with my sister and even fell into a muddy puddle but couldn't get up because I was laughing so much!

Emily and I are riding with Debbie again tomorrow and I have really missed the ponies over Christmas so I am going to take them a carrot each to say happy Christmas!

HAPPY CHRISTMAS EVERYONE!

I am sooooooooooooooo excited. Mummy and Daddy say I have been very well behaved and I havn't lost any presents for being naughty (yet) and (hopefully) I will be getting lots of presents so I am very happy. Merry Christmas everybody and thank you all very much for leaving me messages this year. There are some people I don't know like Max and Katty so thank you to you both too.

My hair has all come out again so I am really pleased I have my new wig. Pete (the man who made it for me) gave me a voucher for Claires accessories so I bought some nice hair bands to wear with it which go with my outfits.

I am very pleased with myself this week because now that I don't have my nose tube anymore I have to take my medicines in my mouth and do you know what I have been doing????? Well I have learnt how to take the tablets whole washed down with a glass of water and it is so easy and takes only a second but before it used to take about half an hour for each one!
Love Mima

Wednesday 19th December 2007

A REALLY GREAT DAY

Today has been a really great day and do you know why????? I went in to hospital to have a blood test and deliver all the Christmas presents and then I took my nose tube out!!! That means I can eat a meal without it being uncomfortable in the back of my throat (but it also means I have to take the stupid medicines in my mouth again - yukkkkkk!)

The other really good news is my blood results were good enough for me to be able to go to Flicks in the Sticks tomorrow and Beauty and the Beast on Saturday. Yippeeeeee!!!

I am just having my pudding now as I have eaten loads of steak, chips, carrots and broccoli. Yummy, what shall I have for pudding? Choc chip cookie, flake choc mousse, ice cream, lollie, meringue or all of it?!?!?

Toodle pip.

Tuesday 18th December 2007

Only 7 days until Christmas, then 6 tomorrow and then 5, then 4, 3, 2, 1 and then yippedy doodah it is Christmas day!!! Not that I am excited or anything!

It has been really cold today and as my hair is falling out again I have had a very cold head - why does that have to happen at Christmas, just when it is getting cold. I bet it will snow soon just when I have no hair left at all.

I am eating my supper, guess what it is................pasta with broccoli and carrots and I have made some strawberry whip for pudding. Emily and I have been to the Jefferson's for lunch today and played with those naughty boys and their gerbils Hercules and something. We all had pancakes for pudding which were yummy.

I hope all the nurses are excited because I am going to Ward 27 tomorrow with my sack of presents (well, wheelchair full cos I can't carry them all!) Ho Ho Ho!!!

Friday 14th December 2007

The Christmas holidays have started!!!

I am so pleased that the holidays have started but I feel pretty rubbish so am sorry that it is always in the holidays when I feel ill. I had some friends to play after school today and we watched a christmas movie and now Lily is staying for a sleepover. I am sooooo tired that I think we will have to go straight to sleep.

Lily is coming riding with me tomorrow (yeah!) I hope it won't be too cold. We have all our clothes ready and thermals too. Last week Emily and I got sooooo wet and cold but we still really loved it!

We have put our tree up at home and Em and I have put one up in the playroom too. We even have some presents under the tree and I am very excited. My Granpa came round tonight to give us his presents because he is away for Christmas and he gave me a top and a scarf from my favourite shop Monsoon. They are both really really nice. Well done Granpa!!!

I have a few days off from treatment now so my bloods can recover after the last three weeks of chemo. I am not feeling too good so Mummy thinks I will probably need some more blood next week. I will have a blood test on Wednesday to see and then if the results are ok I will start the next block of treatment on boxing day which is chemo every day for two weeks with a couple of days off in the middle. Yuk yuk yuk. Oh yes, I am back on steroids too so that makes you feel cross and hungry.

Tuesday 4th December 2007

I just picked up my new wig!!!

We are just home from Birmingham and got my new wig which has been made especially for me by a very nice man called Pete who is part of Little Princesses Trust. They make the shape of your head with clingfilm and sellotape and then send it to America for making into a wig with real hair on it. I really love it and it is so comfy and not itchy like the other wig I had.

Pete is very kind and he gave Emily and me a voucher for £10 to spend in Claire's Accessories so we went there and had a really fun time.

I am going to the Christmas panto with my class tomorrow morning and Mummy is coming too. We are going to see 101 Dalmations and I am excited about that. We have to take a packed lunch so I just don't know what I will eat.

I am going to hospital again on Thursday for some more chemo. This one makes my wee pink so it is really funny! I don't think I will feel very well afterwards as it makes me feel sick so I don't think I will go to school again until next week.