Sunday 24th February 2008

BUSY, BUSY, BUSY

I have had a really busy weekend. Yesterday, I bet you can't guess what we did in the morning??????? Yes, we went riding. It was great. I rode Snowy who was very well behaved and I cantered and jumped with him really well. Emily rode Roos who she is not too sure of but still had fun. Then we went to hospital for chemo. I had some more Vincristine and some IV methotrexate which took about an hour. Both Rubys were there so it was nice to see them and also Louis is still there and I always have fun with him. Big Ruby was very bored though because she was waiting for a blood transfusion and platelets which had to come from Sheffield. Sorry I couldn't stay to keep you company Ruby and I hope it all went ok in the end.

Today, I had a very lazy morning watching TV and lying around in bed. Daddy decided we should have roast pork for lunch today but we didn't really like it so won't be doing that again! Then I went to my friend Freya's 9th birthday party this afternoon. It was great fun and we dressed up like St Trinians girls and did a dance routine. I was one of the team leaders and loved it. Happy Birthday Freya.

I am very tired tonight so off to bed now. No treatment until next Monday and then some more Vincristine and IV Methotrexate until I reach toxicity!!! That will either be that my platelets or neutrophils are too low to have any more or my mouth and lips will be ulcered and blistered and I won't be able to have any more. I hope it will be my bloods are not good enough but last time I had to go into hospital because my mouth was so sore and I had to be on morphine! Yukkkkkk!!!

We heard some very sad news this week. My friend Tom from Ward 27 died. He had cancer in his bones and had already lost one of his arms. He was really good fun and always made me smile. He used to tell us all jokes and play bingo and lots of games at the hospital with us. I will really miss him. Bye Bye Tom.

One last thing. I keep forgetting to tell you that the chickens are laying! Not very often, but we have had 5 eggs now. Digby found the last two under a bush in the garden. He was so funny, he was really excited and started running around the garden then came to Daddy and put first one egg down on the floor very gently and then went to get another. Clever boy!!! Emily put them in her pocket and broke one!

Monday 18th February 2008

THE BEST WEEKEND EVER EVER EVER!!!!!

We made it to Dittisham to stay with Uncle Y'Ed, Nickety Aunt Nocs, Hattie, Max and Tilly Bom Bom and had just about the best holiday ever. I felt a bit poorly to start with but once I had all my anti sickness medicines I began to feel much better.

We did so much and the weather was fantastic. On Saturday, we went to a beach which was down a really long pretty lane and when we got there there was nobody on the beach. Daddy and Uncle Ed cooked moules and they were delicious and it was such fun. We all went on an adventure over the rocks and then made a dam in the sea and Tilly and I made a boat to play in!

We did lots of crabbing and you would not believe how many crabs we caught. Then we let them all go and they had a race to the sea.

It was a really cool weekend. Kerching!!!

TILLY AND ME IN OUR SAND BOAT WE MADE ON THE BEACH

DADDY AND UNCLE ED COOKING MOULES

EM AND ME ON THE FERRY TO DARTMOUTH

HATTIE, MAX, TILLY, EM, DADDY AND ME ON THE FERRY

Monday 11th February 2008

Well the good news is that my neutrophils have gone right up to 1.1 so I can start the next block of treatment tomorrow. This is another 9 week block called Escalating Capizzi and it is the 2nd time I have done this one. Last time I spent alot of time in hospital and had the brain seizure so we are not looking forward to it much!

This also means though that after I have some asparagus and mayonnaise on Thursday we are so excited because we are going to Devon to see Uncle y'Edward, Auntie Nic-Nocs, Hattie, Max and Tilly. Yippeee, yippee, yippeeeeee!!!!!

We have had a great day today. We met Philly philpot, Rabbi, Guy and Misha and went for a bike ride through Burghley Park to the Sculpture garden. We kept hiding from Mummy and Philly and had a real laugh. In the end Digby found us and told Mummy where we were!!!

The chickens are all fine but have not laid an egg yet. I bet they will lay one for my breakfast tomorrow because I will be nil by mouth and won't be able to have it!

The chickens have a new home!!!

Fresh eggs for breakfast

Here are Tipsy, Hetty and Ebony. They will be having two more sisters but they have not been born yet.

Saturday 10th February 2008

Hello Everyone!!!

I am just about to go riding so I am really excited. When I rang Debbie yesterday to see if it was ok for me to ride (she owns the stables) she said I could if I took some cake!!! So I have been baking this morning and have iced lots of fairy cakes to take with me.

It is a beautiful sunny day in Billesdon so that makes everyone smile. I just went down to our village shop with Digby to pick up the bread and I met lots of smiley and chatty people on the way. Digby loves meeting people as they all stroke him.

I had a great day yesterday because Mummy's friend Helena rang and asked if I could babysit her baby called Alice. She is 6 months old and I love her. She smiles at me all the time and I am her best mate! Helena and I took her to the pottery painting cafe and we painted her feet and made a plate for Alice. Then I painted an egg box made out of pot because .........................

For Daddy's birthday we are giving him some chickens to keep in the yard at the back of our house because we eat alot of eggs and it would be nice to have our own so tomorrow we are going to see a man call chicken Alasdair to choose our hens and their house. I will put some photos on here when we have them. We are going to chose one each and name it and mine is going to be called Tipsy.

Got to go riding now. Byeeeeeee

Wednesday 6th February 2008

My blood is not good enough yet!!!

Sadly (well not really because I don't like treatment) my blood results were not good enough to start the next block of treatment on Tuesday so I had another blood test this morning and guess what?????? Well my neutrophils are still not good enough. They are 0.55 and need to be 0.75 or more to start treatment. Never mind, I will now have another blood test on Monday to see if I can start on Tuesday - great half term that will be.

Did you know I can't go to school this week? I am really well but there is alot of Chicken Pox at school so it is better for me not to be there. My big sis Em is not at school either though because Mummy, Daddy and Emily all have really bad colds. I have moved out to Granny and Papa's house because it is germ free up there!!!

I have a few messages:

Katie, if you read this, I am going to pop in to see you tomorrow to take my needle out if that is ok with you because I don't like riding with it in.

Ruby, I hope you are feeling better now and your neutrophils are getting better.

Ben, I hope you are enjoying your break and your neutrophils get better.

Lucy, I love your new website and I hope you enjoyed Norwich.

Helen, is it your wedding on Saturday this week?????? I hope you and Hannah had fun on your hen night.

Friday 1st February 2008

Happy Birthday Granpa!!!

My Granpa is 70 today and we are going to celebrate with him on Sunday - yippeee!!!

Guess where I have been for the last three days???? In hospital!!! I didn't feel very well on Wednesday and my temperature kept going up so Mummy rang the hospital and they asked us to go in. When we got there I was feeling really poorly and had a sore tummy and I couldn't walk, then I was sick and felt even more rubbish so I was given some antibiotics into my line but then in the night my temperature went down and I started to feel much better. Anyway, I have just got home and now have to go back every afternoon until Monday for some more antibiotics and then I should be better.

My neutrophils are rubbish 0.10 so couldn't be much lower, so if you have any sniffles or bugs, please don't come near me because I don't want to go back in to hospital just yet. Because my neutrophils are so low, I didn't start the next block of treatment but I will have another blood test on Monday to see if I can start on Tuesday.

Have a nice weekend everyone.